Blood Cancers & Disorders Support Group

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Comment

I have the JAK2 mutation and, like you, my high platelets were discovered by blood work...

https://connect.mayoclinic.org/comment/1076886/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: May 29 7:27am

Comment

There is a lot of amazing info in this group. Kudos to many of you have...

https://connect.mayoclinic.org/comment/657917/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2021

Comment

I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...

https://connect.mayoclinic.org/comment/1104835/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 13 9:06am

Comment

I don’t have EV, but I can give you first hand knowledge regarding hydroxyurea..I was diagnosed...

https://connect.mayoclinic.org/comment/784473/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2022

Comment

Hi, ı am a patient who does have a MF/MDS overlap with JAk2 and SBF31 mutations,...

https://connect.mayoclinic.org/comment/328555/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

Comment

Hi @learnandlive I recently learned that PV can be related to sleep apnea as well. My...

https://connect.mayoclinic.org/comment/783163/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

Comment

Hi Bonnie, I’m saddened that you have been diagnosed with MDS/MPN-RS-T. I remember my original diagnosis...

https://connect.mayoclinic.org/comment/970297/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2023

Comment

Hello, I too have Polycythaemia Vera. I was diagnosed just over one year ago when I...

https://connect.mayoclinic.org/comment/787794/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

Comment

Welcome to Connect, @chella65. As you can see you’re not alone with your new diagnosis of...

https://connect.mayoclinic.org/comment/879767/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Comment

Hello Debbie, Great to hear from you. I made my original post almost a year ago,...

https://connect.mayoclinic.org/comment/998935/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jan 17 10:29am