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Discussions (75)
Comments (1,105)
Comment
Hi Lynne, I am also triple negative ET. You’re the first person that I’ve “met” on...
https://connect.mayoclinic.org/comment/1246167/
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Discussion:
Like to know more. Just told I have Triple Negative MPN.
Support Group:
Blood Cancers & Disorders
Posted: Feb 26 6:40pm
Comment
Hi @rosereb. Hemoglobin and hematocrit are based on whole blood numbers and are dependent on plasma...
https://connect.mayoclinic.org/comment/1131371/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Aug 26, 2024
Comment
Hi Tessa My mum was diagnosed with ET when she went to routinely donate blood. She...
https://connect.mayoclinic.org/comment/1069140/
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Discussion:
Essential thrombocythemia: Interested in connecting with others
Support Group:
Blood Cancers & Disorders
Posted: May 16, 2024
Comment
I think we all have to do our own research and listen to our own doctors....
https://connect.mayoclinic.org/comment/994348/
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Discussion:
ET, Polycythemia, Jax2: Is this a blood cancer?
Support Group:
Blood Cancers & Disorders
Posted: Jan 9, 2024
Comment
I was diagnosed with ET with Jak2 by accident 2005. My 1st. Hematologist started me on...
https://connect.mayoclinic.org/comment/966728/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Nov 17, 2023
Comment
Good question! I have been going over this in my mind for a couple of weeks....
https://connect.mayoclinic.org/comment/788217/
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Discussion:
New to Pegasys for ET - advice please!
Support Group:
Blood Cancers & Disorders
Posted: Dec 23, 2022
Comment
Hello! So I was recently diagnosed with ET as my platelets rose from 300-to 650 in...
https://connect.mayoclinic.org/comment/781132/
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Discussion:
How did you make the final decision to begin HU protocol for ET?
Support Group:
Blood Cancers & Disorders
Posted: Dec 5, 2022
Comment
I am 65 JAK2 positive ET. My hematologist has me on low dose aspirin (1 per...
https://connect.mayoclinic.org/comment/778819/
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Discussion:
How did you make the final decision to begin HU protocol for ET?
Support Group:
Blood Cancers & Disorders
Posted: Nov 29, 2022
Comment
I’m extremely late to this as I’m sure that by now you’ve been either diagnosed or...
https://connect.mayoclinic.org/comment/1192993/
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Discussion:
What might this be? polycythemia vera, PCOS, lupus, something else?
Support Group:
Blood Cancers & Disorders
Posted: Dec 18, 2024
Comment
I have been prescribed Inegra, which is a combo of Iron and Vitamin C and is...
https://connect.mayoclinic.org/comment/1239853/
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Discussion:
My mom has Polycythemia Vera: Can PV be managed without phlebotomies?
Support Group:
Blood Cancers & Disorders
Posted: Feb 18 11:20am
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