Blood Cancers & Disorders Support Group

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Comment

Hello all! I am new to this forum and I am so glad I happened upon...

https://connect.mayoclinic.org/comment/1002607/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 7:39pm

Comment

Yes it was positive medium Deterioration. Joe my husband was on Hydrea but his legs started...

https://connect.mayoclinic.org/comment/1051576/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 7:05am

Comment

I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...

https://connect.mayoclinic.org/comment/1087439/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 15 5:05pm

Comment

Hello @cgpak, I can understand your wanting to know about the experience of others with ET....

https://connect.mayoclinic.org/comment/337139/

Discussion: Spleen involvement in ET

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2021

Comment

Hi...I have a condition called Myeloid/lymphoid neoplasms with PCM1-JAK2. My first indication of something wrong was...

https://connect.mayoclinic.org/comment/132623/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: May 7, 2020

Comment

I think I may be one of the people with the Jak2 mutation that lay dormant...

https://connect.mayoclinic.org/comment/978261/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2023

Comment

Hi, i was diagnosed with primary polycythaemia 2 weeks back, dr has said that my Jak2...

https://connect.mayoclinic.org/comment/822183/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2023

Comment

I was recently diagnosed with this as well, at age 69. The chemo I'm taking is...

https://connect.mayoclinic.org/comment/983162/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2023

Comment

Hello @kanaazpereira , The article you shared (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562533/ ) answers alot of my inquiry. Just wondering...

https://connect.mayoclinic.org/comment/194287/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2019

Comment

Yes, I am CALR-ET for at least 15 years, and I'm sure I come off like...

https://connect.mayoclinic.org/comment/816179/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023