Blood Cancers & Disorders Support Group

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Comment

Hi winmil99, Welcome to the site. I was diagnosed in June 2022 with platelets at 735....

https://connect.mayoclinic.org/comment/887358/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Comment

I was really interested in what your MPN Specialist had to say. I also have had...

https://connect.mayoclinic.org/comment/792671/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Comment

Your story sounds just like mine. My platelets started rising slowly over four years. It hit...

https://connect.mayoclinic.org/comment/778218/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2022

Comment

Hi Terry @terese7 Essential Thrombocythemia is a blood condition where your bone marrow is producing too...

https://connect.mayoclinic.org/comment/1091025/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

Comment

The more research I do regarding my wife (Becky’s) ET diagnosis the more I’m wondering about...

https://connect.mayoclinic.org/comment/1154205/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2024

Comment

Hi Wiggins32....My nurse practitioner was the person who found the causative factor of my high platelet...

https://connect.mayoclinic.org/comment/782402/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Comment

Hi Vicky58, There’s a large network of members in Connect who also have ET and share...

https://connect.mayoclinic.org/comment/1102781/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Comment

Welcome to Connect, @johngrudnowski. I’m a little envious to see you’re in Costa Rica…sunshine and warmth!...

https://connect.mayoclinic.org/comment/999949/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2024

Comment

My husband was dx with Jak2 about 10 months go when his WBC was high on...

https://connect.mayoclinic.org/comment/599791/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021

Comment

I traveled as usual and flew places in 2020 and enjoyed many wonderful experiences with family...

https://connect.mayoclinic.org/comment/194376/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2021