Blood Cancers & Disorders Support Group

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Comment

You are absolutely correct on doctors taking time before they can figure out the problem with...

https://connect.mayoclinic.org/comment/1064567/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2024

Comment

I was diagnoses with ET Jak2 in jaune 2024, I am 70, jog and exercise daily,...

https://connect.mayoclinic.org/comment/1025941/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Comment

My hematologist said it's in the MPN cancer family but it doesn't work like a cancer....

https://connect.mayoclinic.org/comment/995692/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2024

Comment

My JAK2 Mutation was discovered 11 years ago, quite by accident. I never had any symptoms....

https://connect.mayoclinic.org/comment/194343/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2019

Comment

My father passed away from a battle of myelofibrosis (MF), over 10 years after being diagnosed...

https://connect.mayoclinic.org/comment/646343/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2021

Comment

JAK2+, diagnosed Feb 2024. Counts had been elevated for 3 years, then jumped at annual physical....

https://connect.mayoclinic.org/comment/1191756/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2024

Comment

I am have ET (JAK2+). I have been using bio identical hormones for 17 years with...

https://connect.mayoclinic.org/comment/1151761/

Discussion: Thoughts on bio identical hormones and ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2024

Comment

Hi I have ET and Jak2 mutation. I have been on HU for 3 weeks. My...

https://connect.mayoclinic.org/comment/1120672/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

Comment

Hi there, I have MDS/MPN overlap. I have the JAK2 mutation and have been on 500...

https://connect.mayoclinic.org/comment/1027326/

Discussion: Pain in Upper Left Abdomen

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2024

Comment

I started HU once a week for a month, then 2x week for 8 months. This...

https://connect.mayoclinic.org/comment/1006501/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2024