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Discussions (75)
Comments (1,105)
Comment
I've been on HU for 2 years, 500 mg, 4x week, baby aspirin 2x day, and...
https://connect.mayoclinic.org/comment/1210567/
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Discussion:
Starting 17th year with ET. What's ahead?
Support Group:
Blood Cancers & Disorders
Posted: Jan 13 11:03am
Comment
Hi, Thanks for your input. I have JAK2 mutation too, just found out in April. How...
https://connect.mayoclinic.org/comment/987914/
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Discussion:
Essential Thrombocytosis symptoms
Support Group:
Blood Cancers & Disorders
Posted: Dec 28, 2023
Comment
JAK2+, diagnosed Feb 2024. Counts had been elevated for 3 years, then jumped at annual physical....
https://connect.mayoclinic.org/comment/1191756/
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Discussion:
How fast do you start to feel hydroxyurea symptoms?
Support Group:
Blood Cancers & Disorders
Posted: Dec 16, 2024
Comment
I am have ET (JAK2+). I have been using bio identical hormones for 17 years with...
https://connect.mayoclinic.org/comment/1151761/
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Discussion:
Thoughts on bio identical hormones and ET?
Support Group:
Blood Cancers & Disorders
Posted: Oct 4, 2024
Comment
Hi I have ET and Jak2 mutation. I have been on HU for 3 weeks. My...
https://connect.mayoclinic.org/comment/1120672/
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Discussion:
Anyone else find the side effects of Hydrea 500MG frightening?
Support Group:
Blood Cancers & Disorders
Posted: Aug 9, 2024
Comment
Hi there, I have MDS/MPN overlap. I have the JAK2 mutation and have been on 500...
https://connect.mayoclinic.org/comment/1027326/
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Discussion:
Pain in Upper Left Abdomen
Support Group:
Blood Cancers & Disorders
Posted: Mar 4, 2024
Comment
I started HU once a week for a month, then 2x week for 8 months. This...
https://connect.mayoclinic.org/comment/1006501/
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Discussion:
Essential Thrombocythemia: Making treatment decisions
Support Group:
Blood Cancers & Disorders
Posted: Jan 30, 2024
Comment
Hi winmil99, Welcome to the site. I was diagnosed in June 2022 with platelets at 735....
https://connect.mayoclinic.org/comment/887358/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jun 29, 2023
Comment
I was really interested in what your MPN Specialist had to say. I also have had...
https://connect.mayoclinic.org/comment/792671/
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Discussion:
High platelets, Jak2, ET, and pre-fib new diagnosis
Support Group:
Blood Cancers & Disorders
Posted: Jan 5, 2023
Comment
Your story sounds just like mine. My platelets started rising slowly over four years. It hit...
https://connect.mayoclinic.org/comment/778218/
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Discussion:
Essential thrombocytosis with MPL mutation
Support Group:
Blood Cancers & Disorders
Posted: Nov 28, 2022
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