Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Blood Cancers & Disorders Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
1,205 total results
All
Discussions (77)
Comments (1,128)
Comment
I have JAK2 and take 1000mg of HU and it has affected my hair. It grows...
https://connect.mayoclinic.org/comment/1317294/
Copy link to clipboard
Discussion:
Regrowing hair
Support Group:
Blood Cancers & Disorders
Posted: May 31 12:21pm
Comment
I am on it for almost a year. I read it takes about six months or...
https://connect.mayoclinic.org/comment/993710/
Copy link to clipboard
Discussion:
ET, Polycythemia, Jax2: Is this a blood cancer?
Support Group:
Blood Cancers & Disorders
Posted: Jan 8, 2024
Comment
Good morning Pumpkin.....I posted a message to you the other day but I think I touched...
https://connect.mayoclinic.org/comment/774152/
Copy link to clipboard
Discussion:
Essential thrombocytosis with MPL mutation
Support Group:
Blood Cancers & Disorders
Posted: Nov 17, 2022
Comment
Welcome to Connect, @pearly, and thank you for sharing your history. Essential thrombocythaemia (ET) is indeed...
https://connect.mayoclinic.org/comment/146291/
Copy link to clipboard
Discussion:
How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Support Group:
Blood Cancers & Disorders
Posted: Apr 9, 2017
Comment
My 68 year old friend had a pulmonary embolism on 5/18/22. This was two weeks after...
https://connect.mayoclinic.org/comment/1122553/
Copy link to clipboard
Discussion:
Research on COVID 19 vax causing Essential Thrombocythemia?
Support Group:
Blood Cancers & Disorders
Posted: Aug 13, 2024
Comment
Hi Kelly, I too am Jak2 positive with PV diagnosed at 55 on Hydroxyurea now for...
https://connect.mayoclinic.org/comment/1127238/
Copy link to clipboard
Discussion:
What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?
Support Group:
Blood Cancers & Disorders
Posted: Aug 20, 2024
Comment
hey carlavan. i am soo sorry to here about you but i can feel you because...
https://connect.mayoclinic.org/comment/758124/
Copy link to clipboard
Discussion:
Anyone have CALR mutation with constitutional symptoms?
Support Group:
Blood Cancers & Disorders
Posted: Oct 6, 2022
Comment
Hi @pennyhedgecoth and welcome to the Blood Cancers & Disorders group. I'm glad you found us....
https://connect.mayoclinic.org/comment/329372/
Copy link to clipboard
Discussion:
JAK2 ASXL1 Mutations: Anyone else?
Support Group:
Blood Cancers & Disorders
Posted: Dec 9, 2020
Comment
Hello, I am 1.5 years into taking it. My platelets were 950 as well and I...
https://connect.mayoclinic.org/comment/950065/
Copy link to clipboard
Discussion:
Anyone else find the side effects of Hydrea 500MG frightening?
Support Group:
Blood Cancers & Disorders
Posted: Oct 19, 2023
Comment
Hi, I've been following along, interested because I've had ET w/Jak2 for almost 2 years. Earlier...
https://connect.mayoclinic.org/comment/1174348/
Copy link to clipboard
Discussion:
Are visual disturbances related to ET or hydroxyurea?
Support Group:
Blood Cancers & Disorders
Posted: Nov 16, 2024
First
Previous
...
65
66
67
68
69
70
71
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect