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990 total results
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Discussions (64)
Comments (926)
Comment
I tested negative for the jak2 went to the hematologist and he did more blood tests....
https://connect.mayoclinic.org/comment/810170/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Feb 12, 2023
Comment
Hi everyone, I am newly diagnosed (Fall 2021) and have the JAK2 V617F mutation. In my...
https://connect.mayoclinic.org/comment/770649/
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Discussion:
People living with ET and taking Hydrea: Anybody setting records?
Support Group:
Blood Cancers & Disorders
Posted: Nov 8, 2022
Comment
68 yr old diagnosed 2 years ago with PMF, Jak2 mutation. Have managed foot pain symtoms...
https://connect.mayoclinic.org/comment/132637/
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Discussion:
Myelofibrosis*
Support Group:
Blood Cancers & Disorders
Posted: Jul 18, 2020
Comment
You need to demand an Erythropoietin test (EPO), if this protein is low you have PV,...
https://connect.mayoclinic.org/comment/783931/
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Discussion:
Polycythemia Vera - Help getting Diagnosis
Support Group:
Blood Cancers & Disorders
Posted: Dec 12, 2022
Comment
Hi all. In December, I was diagnosed with a JAK2 mutation. Finally had my appointment with...
https://connect.mayoclinic.org/comment/231778/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Jan 11, 2019
Comment
Hello all. About a year ago, I had a nephrectomy due to renal cell carcinoma. Since...
https://connect.mayoclinic.org/comment/194266/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Dec 26, 2018
Comment
Hi @papa6275 - my diagnosis was JAK2 PV in May ‘22. Like you I did not...
https://connect.mayoclinic.org/comment/913795/
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Discussion:
Has anyone had experience with Jakafi?
Support Group:
Blood Cancers & Disorders
Posted: Aug 16, 2023
Comment
Hi Ginger, I am 79 diagnosed with ET JAK2. My hematologist gave me an information sheet...
https://connect.mayoclinic.org/comment/892038/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jul 8, 2023
Comment
I have been right where you are. Yes, the words "cancer" and "biopsy" are frightening. Please...
https://connect.mayoclinic.org/comment/995912/
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Discussion:
Essential Thrombocythemia (ET): foods, diet, nutrition?
Support Group:
Blood Cancers & Disorders
Posted: Jan 12 7:58am
Comment
Good morning lindagualtieri. I am from Kentucky. I have had Polycythemia Vera (PV) for 6 years...
https://connect.mayoclinic.org/comment/1148497/
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Discussion:
Need help newly diagnosed with a high platelet count and the JAK2 gene
Support Group:
Blood Cancers & Disorders
Posted: Sep 28 6:56am
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