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Discussions (75)
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Comment
Hi @pennyhedgecoth and welcome to the Blood Cancers & Disorders group. I'm glad you found us....
https://connect.mayoclinic.org/comment/329372/
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Discussion:
JAK2 ASXL1 Mutations: Anyone else?
Support Group:
Blood Cancers & Disorders
Posted: Dec 9, 2020
Comment
My husband has just been diagnosed with MDS after having JAK2 for about ten years. His...
https://connect.mayoclinic.org/comment/1201670/
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Discussion:
MDS and cognitive decline
Support Group:
Blood Cancers & Disorders
Posted: Jan 1 10:12am
Comment
I too had ET due to a JAK2 . Platelet count got to 800,000. I had...
https://connect.mayoclinic.org/comment/1195372/
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Discussion:
Anyone living with Essential Thrombocythemia with JAK2?
Support Group:
Blood Cancers & Disorders
Posted: Dec 22, 2024
Comment
My experience was the best possible. I arrived, was put in a gown, and given a...
https://connect.mayoclinic.org/comment/1166063/
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Discussion:
What was your experience with bone marrow biopsy?
Support Group:
Blood Cancers & Disorders
Posted: Nov 1, 2024
Comment
I am on it for almost a year. I read it takes about six months or...
https://connect.mayoclinic.org/comment/993710/
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Discussion:
ET, Polycythemia, Jax2: Is this a blood cancer?
Support Group:
Blood Cancers & Disorders
Posted: Jan 8, 2024
Comment
Good morning Pumpkin.....I posted a message to you the other day but I think I touched...
https://connect.mayoclinic.org/comment/774152/
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Discussion:
Essential thrombocytosis with MPL mutation
Support Group:
Blood Cancers & Disorders
Posted: Nov 17, 2022
Comment
Welcome to Connect, @pearly, and thank you for sharing your history. Essential thrombocythaemia (ET) is indeed...
https://connect.mayoclinic.org/comment/146291/
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Discussion:
How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Support Group:
Blood Cancers & Disorders
Posted: Apr 9, 2017
Comment
Hello, I am 1.5 years into taking it. My platelets were 950 as well and I...
https://connect.mayoclinic.org/comment/950065/
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Discussion:
Anyone else find the side effects of Hydrea 500MG frightening?
Support Group:
Blood Cancers & Disorders
Posted: Oct 19, 2023
Comment
Hi, I've been following along, interested because I've had ET w/Jak2 for almost 2 years. Earlier...
https://connect.mayoclinic.org/comment/1174348/
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Discussion:
Are visual disturbances related to ET or hydroxyurea?
Support Group:
Blood Cancers & Disorders
Posted: Nov 16, 2024
Comment
You are absolutely correct on doctors taking time before they can figure out the problem with...
https://connect.mayoclinic.org/comment/1064567/
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Discussion:
Platelets are too high: What can be done to find root cause?
Support Group:
Blood Cancers & Disorders
Posted: May 9, 2024
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