Blood Cancers & Disorders Support Group

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Comment

Get on the email list for the MPN Foundation and watch their excellent programs and videos....

https://connect.mayoclinic.org/comment/946029/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

Comment

@momz I was diagnosed with MDS with Refractory Anemia and multi lineage dysplasia in February 2021....

https://connect.mayoclinic.org/comment/926928/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

Comment

Colleen, thank you for asking. Very fortunate that all my other blood work is within acceptable...

https://connect.mayoclinic.org/comment/693590/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2022

Comment

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

Comment

My doctor has taken time to figure out the problem with my raised platelets. I have...

https://connect.mayoclinic.org/comment/1064569/

Discussion: Essential Thrombocythemia and relationship to stroke

Support Group: Blood Cancers & Disorders

Posted: May 9, 2024

Comment

Hello All, Here is a wonderful booklet for you to read. It may look too complicated...

https://connect.mayoclinic.org/comment/1048088/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2024

Comment

Hi cdurbin, Thanks for posting. I guess I just really would like to have it determined...

https://connect.mayoclinic.org/comment/1219910/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 3:35pm

Comment

My husband has just been diagnosed with MDS after having JAK2 for about ten years. His...

https://connect.mayoclinic.org/comment/1201670/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jan 1 10:12am

Comment

I too had ET due to a JAK2 . Platelet count got to 800,000. I had...

https://connect.mayoclinic.org/comment/1195372/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

Comment

My experience was the best possible. I arrived, was put in a gown, and given a...

https://connect.mayoclinic.org/comment/1166063/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2024