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Discussions (64)
Comments (926)
Comment
I am surprised you are starting on Pegasys first. From what I have read Hydroxyurea is...
https://connect.mayoclinic.org/comment/774166/
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Discussion:
High platelets, Jak2, ET, and pre-fib new diagnosis
Support Group:
Blood Cancers & Disorders
Posted: Nov 17, 2022
Comment
That is such encouraging news. Thank you! I did have a bone marrow biopsy & I...
https://connect.mayoclinic.org/comment/799804/
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Discussion:
How did you make the final decision to begin HU protocol for ET?
Support Group:
Blood Cancers & Disorders
Posted: Jan 21, 2023
Comment
I also started with platelets over one million at age 39. Now I'm 69. I'm also...
https://connect.mayoclinic.org/comment/1041181/
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Discussion:
People living with ET and taking Hydrea: Anybody setting records?
Support Group:
Blood Cancers & Disorders
Posted: Mar 27 1:46pm
Comment
I'm 69 years old, JAK2 mutation, and diagnosed with ET this past November with platelets around...
https://connect.mayoclinic.org/comment/1026487/
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Discussion:
ET: What are acceptable platelet numbers?
Support Group:
Blood Cancers & Disorders
Posted: Mar 3 7:26am
Comment
A full blood test workup with the hematologist and an exam to determine the size of...
https://connect.mayoclinic.org/comment/1162672/
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Discussion:
JAK2 Mutation and enlarged spleen: What might it mean?
Support Group:
Blood Cancers & Disorders
Posted: Oct 25 1:36pm
Comment
Hi Pumpkin1, Me, too, ET w/ JAK2. My primary sent me to a heme doc at...
https://connect.mayoclinic.org/comment/929615/
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Discussion:
Thrombocythemia and need neck surgery: Will surgery make it worse?
Support Group:
Blood Cancers & Disorders
Posted: Sep 13, 2023
Comment
I'm a 72 yrs. old and I was diagnosed with ET in 2011 when my platelet...
https://connect.mayoclinic.org/comment/635580/
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Discussion:
How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Support Group:
Blood Cancers & Disorders
Posted: Sep 14, 2021
Comment
Penny...what was the determination? EV..PV? I too was diagnosed 3 years ago. BMB confirmed PV with...
https://connect.mayoclinic.org/comment/329374/
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Discussion:
JAK2 ASXL1 Mutations: Anyone else?
Support Group:
Blood Cancers & Disorders
Posted: Jan 15, 2021
Comment
Your post is uplifting & amazing. I have been taking 1000mg HU now for 3 weeks....
https://connect.mayoclinic.org/comment/1042373/
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Discussion:
Anyone else find the side effects of Hydrea 500MG frightening?
Support Group:
Blood Cancers & Disorders
Posted: Mar 29 3:29pm
Comment
Hi Wiggins32, I have had slightly low iron and now take iron supplements...Many of the symptoms...
https://connect.mayoclinic.org/comment/826011/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Mar 14, 2023
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