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Discussions (51)
Comments (709)
Comment
My husband was diagnosed with MDS 5q deletion in 2018. He is age 83 now and...
https://connect.mayoclinic.org/comment/1227456/
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Discussion:
Anyone have or heard of MDS with 5q-syndrome?
Support Group:
Blood Cancers & Disorders
Posted: Feb 2 8:05am
Comment
Hello. No I certainly did not make this up. I didn't say the company name because...
https://connect.mayoclinic.org/comment/987086/
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Discussion:
Insurance has denied coverage
Support Group:
Blood Cancers & Disorders
Posted: Dec 27, 2023
Comment
Hi @pixiesusan My name is Audrey L. I am sorry I have not seen your messages...
https://connect.mayoclinic.org/comment/1137910/
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Discussion:
Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?
Support Group:
Blood Cancers & Disorders
Posted: Sep 7, 2024
Comment
Hi @Katgob. You’re making great strides with your recovery. Amazing you’re able to start your Tacro...
https://connect.mayoclinic.org/comment/1087452/
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Discussion:
My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Support Group:
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy
Posted: Jun 15, 2024
Comment
Melissa, i am not a doctor, but i can share what I've been doing: 1. sudden...
https://connect.mayoclinic.org/comment/1155566/
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Discussion:
Venetoclax plus decitabine not working?
Support Group:
Blood Cancers & Disorders
Posted: Oct 11, 2024
Comment
Ok we’re so I start. My husband had been watched by a hematologist for at least...
https://connect.mayoclinic.org/comment/764387/
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Discussion:
Low Platelets with Myelodysplastic Syndrome (MDS)
Support Group:
Blood Cancers & Disorders
Posted: Oct 23, 2022
Comment
Good morning @g4c, Welcome to Connect. Before taking any supplements or radically changing your diet after...
https://connect.mayoclinic.org/comment/1220316/
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Discussion:
What are you doing to keep AML from relapse after transplant?
Support Group:
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy
Posted: Jan 24 8:04am
Comment
Hi @janetlen. It’s interesting that you had 2 questionable bone marrow biopsies and the 3rd was...
https://connect.mayoclinic.org/comment/986129/
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Discussion:
Myelodysplastic syndromes (MDS): When do you need to start treatment?
Support Group:
Blood Cancers & Disorders
Posted: Dec 24, 2023
Comment
Thank you so much for all the information. I feel better already. I was diagnosed with...
https://connect.mayoclinic.org/comment/1093270/
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Discussion:
I've had CML for 20 years and want to encourage others
Support Group:
Blood Cancers & Disorders
Posted: Jun 24, 2024
Comment
@kva111 Welcome to the Mayo Clinic Connect. I try to stay in my lane when responding...
https://connect.mayoclinic.org/comment/1063782/
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Discussion:
Anyone dealing MDS and how are you doing?
Support Group:
Blood Cancers & Disorders
Posted: May 7, 2024
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