Blood Cancers & Disorders Support Group

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Comment

My doctor has taken time to figure out the problem with my raised platelets. I have...

https://connect.mayoclinic.org/comment/1064569/

Discussion: Essential Thrombocythemia and relationship to stroke

Support Group: Blood Cancers & Disorders

Posted: May 9, 2024

Comment

Hello All, Here is a wonderful booklet for you to read. It may look too complicated...

https://connect.mayoclinic.org/comment/1048088/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2024

Comment

Hi cdurbin, Thanks for posting. I guess I just really would like to have it determined...

https://connect.mayoclinic.org/comment/1219910/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 3:35pm

Comment

Get on the email list for the MPN Foundation and watch their excellent programs and videos....

https://connect.mayoclinic.org/comment/946029/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

Comment

@momz I was diagnosed with MDS with Refractory Anemia and multi lineage dysplasia in February 2021....

https://connect.mayoclinic.org/comment/926928/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

Comment

Colleen, thank you for asking. Very fortunate that all my other blood work is within acceptable...

https://connect.mayoclinic.org/comment/693590/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2022

Comment

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

Comment

My 68 year old friend had a pulmonary embolism on 5/18/22. This was two weeks after...

https://connect.mayoclinic.org/comment/1122553/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2024

Comment

Hi Kelly, I too am Jak2 positive with PV diagnosed at 55 on Hydroxyurea now for...

https://connect.mayoclinic.org/comment/1127238/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2024

Comment

hey carlavan. i am soo sorry to here about you but i can feel you because...

https://connect.mayoclinic.org/comment/758124/

Discussion: Anyone have CALR mutation with constitutional symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2022