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990 total results
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Discussions (64)
Comments (926)
Comment
Are you being seen by a hematologist or your GP? What are your platelets? From what...
https://connect.mayoclinic.org/comment/776839/
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Discussion:
I have JAK2 ET and MPN: Anyone else have these symptoms?
Support Group:
Blood Cancers & Disorders
Posted: Nov 24, 2022
Comment
Additional symptoms I'm experiencing include: swollen lymph nodes on sides of neck and sore throat over...
https://connect.mayoclinic.org/comment/284522/
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Discussion:
Jak 2 and Waldenstrom's Macroglobulinemia
Support Group:
Blood Cancers & Disorders
Posted: Dec 5, 2019
Comment
I have been on hydroxyurea for 10 months now after getting a diagnosis of ET Jak2.....My...
https://connect.mayoclinic.org/comment/918086/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Aug 24, 2023
Comment
I take HU, 500 mg, 2x week, and I am fatigued. I just try to keep...
https://connect.mayoclinic.org/comment/975898/
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Discussion:
Essential Thrombocytosis: What amount of hydroxy do you take?
Support Group:
Blood Cancers & Disorders
Posted: Dec 6, 2023
Comment
Thank you for your response. If I’ve been sitting without much movement, I can wake up...
https://connect.mayoclinic.org/comment/686238/
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Discussion:
I have JAK2 ET and MPN: Anyone else have these symptoms?
Support Group:
Blood Cancers & Disorders
Posted: Mar 3, 2022
Comment
As far as I know, ET with a positive JAK2 mutation normally suggests you have a...
https://connect.mayoclinic.org/comment/284525/
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Discussion:
Jak 2 and Waldenstrom's Macroglobulinemia
Support Group:
Blood Cancers & Disorders
Posted: Dec 11, 2019
Comment
If you have ET, genetic tests help determine your clot risk. I am 70. I have...
https://connect.mayoclinic.org/comment/1040439/
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Discussion:
Im 64 and my blood platelets have been in the low 530-550 range for yr
Support Group:
Blood Cancers & Disorders
Posted: Mar 26 8:43am
Comment
Hi @robinll. With PV (Polycytmenia Vera) it is generally the red blood count that is elevated,...
https://connect.mayoclinic.org/comment/1144372/
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Discussion:
What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?
Support Group:
Blood Cancers & Disorders
Posted: Sep 20 7:36am
Comment
Hi, this is my first time writing anything, but I’ve benefitted tremendously from reading the insights...
https://connect.mayoclinic.org/comment/1167543/
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Discussion:
ET: What are acceptable platelet numbers?
Support Group:
Blood Cancers & Disorders
Posted: Nov 3 6:02pm
Comment
Thank you Eileen, before all this occurred (ET, JAK2) I had been discussing with drs about...
https://connect.mayoclinic.org/comment/798340/
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Discussion:
High platelet count: What does this mean?
Support Group:
Blood Cancers & Disorders
Posted: Jan 18, 2023
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