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Discussions (77)
Comments (1,128)
Comment
I was diagnosed with ET at 37 with platelets at 890. I started on aspirin only...
https://connect.mayoclinic.org/comment/792965/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jan 6, 2023
Comment
Welcome to this "new planet" @cmcj. To help you connect with others, I moved your post...
https://connect.mayoclinic.org/comment/891068/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Jul 6, 2023
Comment
I'm also CALR. Started on 500 mg HU daily when platelets approached 800. Took a year...
https://connect.mayoclinic.org/comment/881192/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jun 19, 2023
Comment
My first meeting with an oncologist after an accurate diagnosis of Primary Mylofibrosis was disturbing. She...
https://connect.mayoclinic.org/comment/1313191/
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Discussion:
Primary Myelofibrosis: What is life going to be like now?
Support Group:
Blood Cancers & Disorders
Posted: May 26 9:31am
Comment
Hi just a quick update on my treatment, I was diagnosed with two mutt Jak2 and...
https://connect.mayoclinic.org/comment/1347124/
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Discussion:
I have JAK2 ET and MPN: Anyone else have these symptoms?
Support Group:
Blood Cancers & Disorders
Posted: Jul 13 10:43am
Comment
Hello @Shenrig. I have MPNs or Myeloproliferative neoplasms a rare blood disorder where the bone marrow...
https://connect.mayoclinic.org/comment/1354511/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jul 23 10:01am
Comment
Hi @amyb52. Welcome to Connect. This is a great forum for meeting other members who share...
https://connect.mayoclinic.org/comment/882031/
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Discussion:
Essential thrombocytosis with MPL mutation
Support Group:
Blood Cancers & Disorders
Posted: Jun 20, 2023
Comment
I myself noticed that my red red and white cells were increasing over time..When I brought...
https://connect.mayoclinic.org/comment/1086304/
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Discussion:
I have JAK2 ET and MPN: Anyone else have these symptoms?
Support Group:
Blood Cancers & Disorders
Posted: Jun 13, 2024
Comment
Hi @judyar I am 79, have ET JAK2 mutation. I have been taking 500 mg Hydroxyurea...
https://connect.mayoclinic.org/comment/973207/
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Discussion:
Essential Thrombocythemia (ET): foods, diet, nutrition?
Support Group:
Blood Cancers & Disorders
Posted: Dec 1, 2023
Comment
ET - prefibrotic myelofibrosis JAK2 - Chronic Myeloproliferative disease on 26th day HU 500mg per day...
https://connect.mayoclinic.org/comment/901889/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Jul 25, 2023
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