Blood Cancers & Disorders Support Group

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Comment

Yes, I'm blessed with an amazing care team: a PCP who was astute enough to contact...

https://connect.mayoclinic.org/comment/1221090/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 7:59am

Comment

Good morning, @onthejoedock ( and Mrs Joe!) I’m a bit chagrinned that I’d forgotten about our...

https://connect.mayoclinic.org/comment/1083472/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

Comment

Hi @judyar I am 79, have ET JAK2 mutation. I have been taking 500 mg Hydroxyurea...

https://connect.mayoclinic.org/comment/973207/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2023

Comment

ET - prefibrotic myelofibrosis JAK2 - Chronic Myeloproliferative disease on 26th day HU 500mg per day...

https://connect.mayoclinic.org/comment/901889/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2023

Comment

I also had hair thinning and nail splintering. My hair is straighter, but not falling out....

https://connect.mayoclinic.org/comment/818157/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2023

Comment

I am 79 and was also diagnosed with ET JAK2 in June 2022. I was already...

https://connect.mayoclinic.org/comment/967863/

Discussion: Lightheaded with ET

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

Comment

I have essential thrombocythemia, with JAK2 gene. Diagnosed in 2022 after a emergency gall bladder operation....

https://connect.mayoclinic.org/comment/1020141/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

Comment

1. Thank you for your service. I, too, was in the Navy a long time ago!...

https://connect.mayoclinic.org/comment/890649/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Comment

Hi there, Yes, this diagnosis does seem to be extremely rare! I don't qualify for RARS-T...

https://connect.mayoclinic.org/comment/865772/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

Comment

Thanks for the question. I was diagnosed with Thrombocytosis, Essential Thrombocythemia and JAK2 gene mutation over...

https://connect.mayoclinic.org/comment/328592/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021