Blood Cancers & Disorders Support Group

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Comment

Sorry to here he joined our band of rare misfits....I have had Primary MF for two...

https://connect.mayoclinic.org/comment/132655/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2020

Comment

Hi, my name is Carlavan and I to have ET with JAK2 mutation, my initial complaint...

https://connect.mayoclinic.org/comment/276870/

Discussion: CalR mutation ET and constitutional symptoms

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2019

Comment

I was diagnosed with MDS/MPN-RS-T in 2018. I have three mutations -JAK2, SRFS2 and IDH1-R132H. My...

https://connect.mayoclinic.org/comment/1042552/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 30 7:06am

Comment

Hang in there. I went undiagnosed for nearly a year. I have had blood work and...

https://connect.mayoclinic.org/comment/1060466/

Discussion: Essential Thrombocythaemia

Support Group: Blood Cancers & Disorders

Posted: May 1 5:58pm

Comment

Thanks Eileen. I had terrible mouth sores with HU and went off for about a month...

https://connect.mayoclinic.org/comment/792213/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

Comment

You seem extremely responsive to Hydroxyurea (HU) if your platelets came down in only ten days....

https://connect.mayoclinic.org/comment/777871/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

Comment

Hi @tennis7777, welcome to Connect. I’m not a medical professional but from my experience of having...

https://connect.mayoclinic.org/comment/1011277/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 7 1:03pm

Comment

Similar to you, I was diagnosed based on blood work, not symptoms. Platelets were a bit...

https://connect.mayoclinic.org/comment/1010600/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 6 9:54am

Comment

Excellent news that you consulted at the Mayo Clinic! That's a great plan for someone planning...

https://connect.mayoclinic.org/comment/1156324/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Oct 13 10:25am

Comment

Hi Lisa. Hopefully you will get some definitive answers once you meet with your Hematologist in...

https://connect.mayoclinic.org/comment/1162384/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25 6:00am