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1,205 total results
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Discussions (77)
Comments (1,128)
Comment
Recently diagnosed in November with pv/et, jak2+. Originally on hydrox 1000 daily with phlebotomy x 3...
https://connect.mayoclinic.org/comment/821163/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Mar 5, 2023
Comment
The varying side effects are interesting to me. I have them all! I started on HU...
https://connect.mayoclinic.org/comment/1347512/
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Discussion:
What are most common side effects when starting HU (Hydroxyurea)?
Support Group:
Blood Cancers & Disorders
Posted: Jul 13 5:16pm
Comment
Hi Arlene, I was diagnosed with ET Jak2 Nov. 2022. I am taking 1000 mg per...
https://connect.mayoclinic.org/comment/1204752/
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Discussion:
Anyone living with Essential Thrombocythemia with JAK2?
Support Group:
Blood Cancers & Disorders
Posted: Jan 5 4:37pm
Comment
Hi, I have ET JAK2, but am not taking HU due to my age and other...
https://connect.mayoclinic.org/comment/830670/
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Discussion:
Hydroxyurea side effects lessen over time?
Support Group:
Blood Cancers & Disorders
Posted: Mar 23, 2023
Comment
Hi I was newly diagnosed with this and am waiting to start on medication. I am...
https://connect.mayoclinic.org/comment/821798/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Mar 6, 2023
Comment
Hi Mikemp, I experienced the same fluctuations. I was diagnosed with ET November 2022. Started out...
https://connect.mayoclinic.org/comment/1275362/
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Discussion:
My platelet count has increased after a year on Hydroxyurea (HU)
Support Group:
Blood Cancers & Disorders
Posted: Apr 6 8:25am
Comment
Your platelet level must be fairly low if starting HU is being left up to you....
https://connect.mayoclinic.org/comment/995371/
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Discussion:
What are pros of hydroxyurea vs other methods of lowering platelets?
Support Group:
Blood Cancers & Disorders
Posted: Jan 11, 2024
Comment
Hi Gary. You’re right, statistically women do appear to outnumber men with ET cases. So, welcome...
https://connect.mayoclinic.org/comment/1117103/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Aug 3, 2024
Comment
there is a naturopathic drug called "lumbrokinase " old Chinese medicine. I am going to start...
https://connect.mayoclinic.org/comment/1021025/
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Discussion:
Essential Thrombocythemia: Making treatment decisions
Support Group:
Blood Cancers & Disorders
Posted: Feb 23, 2024
Comment
I started out taking HU 1x week for a month, 2x week for 8 months, and...
https://connect.mayoclinic.org/comment/1006203/
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Discussion:
What are most common side effects when starting HU (Hydroxyurea)?
Support Group:
Blood Cancers & Disorders
Posted: Jan 29, 2024
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