Blood Cancers & Disorders Support Group

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Comment

Hi Steve, I was just diagnosis with ET yesterday after my bone marrow biopsy came back...

https://connect.mayoclinic.org/comment/1154980/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Oct 10 2:08pm

Comment

Hi @lindagualtieri, Welcome to Connect. Looks like you’ve been dubbed with a new diagnosis and have...

https://connect.mayoclinic.org/comment/1146045/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 23 9:56am

Comment

yeah i'm home now recovering. the JAK2 was negative as was the calr and mpl the...

https://connect.mayoclinic.org/comment/298979/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2020

Comment

Hi, I was Jak2 neg and had a hunch I may not have PV and kept...

https://connect.mayoclinic.org/comment/1024191/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 28 8:44am

Comment

Ok, symptoms no worse and they don’t interfere with my life but unfortunately my platelets have...

https://connect.mayoclinic.org/comment/1043121/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Mar 31 9:18am

Comment

Thanks for your comment. So Pegasus is about $1200 before insurance? Do they accept all insurances?...

https://connect.mayoclinic.org/comment/1010342/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Feb 5 7:09pm

Comment

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3 10:22am

Comment

I am 65 years old and seem to be a rare male here. Not surprising since...

https://connect.mayoclinic.org/comment/1117080/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3 12:33pm

Comment

Hi @themyth, with Polycythemia Vera, too many red blood cells are produced resulting in the high...

https://connect.mayoclinic.org/comment/821819/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

I get annual labs with my physical so we know it's new for me. PLUS I...

https://connect.mayoclinic.org/comment/843149/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023