Blood Cancers & Disorders Support Group

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Comment

Hi Eileen, I have been on Pegasus for 7 weeks, at a dosage of 45 mcg...

https://connect.mayoclinic.org/comment/807552/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

Comment

Were you originally diagnosed by extensive labs and a bone marrow biopsy? Are you seeing an...

https://connect.mayoclinic.org/comment/783396/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

Comment

I have had elevated RBC, WBC, Hemocrit and Hemaglobin for almost three years but am negative...

https://connect.mayoclinic.org/comment/1257432/

Discussion: JAK2 negative test results

Support Group: Blood Cancers & Disorders

Posted: Mar 13 9:57pm

Comment

Hi Arlene, I was diagnosed with ET Jak2 Nov. 2022. I am taking 1000 mg per...

https://connect.mayoclinic.org/comment/1204752/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 5 4:37pm

Comment

Hi, I have ET JAK2, but am not taking HU due to my age and other...

https://connect.mayoclinic.org/comment/830670/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2023

Comment

Hi I was newly diagnosed with this and am waiting to start on medication. I am...

https://connect.mayoclinic.org/comment/821798/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

Welcome to Connect, @shellep16 As fellow member @eloise999 mentioned, an allogenic SCT (using donor cells) would...

https://connect.mayoclinic.org/comment/1324156/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 10 9:17am

Comment

Welcome to this "new planet" @cmcj. To help you connect with others, I moved your post...

https://connect.mayoclinic.org/comment/891068/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

Comment

I'm also CALR. Started on 500 mg HU daily when platelets approached 800. Took a year...

https://connect.mayoclinic.org/comment/881192/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2023

Comment

I was diagnosed with ET at 37 with platelets at 890. I started on aspirin only...

https://connect.mayoclinic.org/comment/792965/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2023