Blood Cancers & Disorders Support Group

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Comment

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

Comment

Jackt00, To answer your question…when the headaches started I had some dizziness and a first ever...

https://connect.mayoclinic.org/comment/830153/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

Comment

Hello, I have had PV with JAK2 for about 5 years. I work and live a...

https://connect.mayoclinic.org/comment/812063/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2023

Comment

Hi Eileen, I have been on Pegasus for 7 weeks, at a dosage of 45 mcg...

https://connect.mayoclinic.org/comment/807552/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

Comment

Were you originally diagnosed by extensive labs and a bone marrow biopsy? Are you seeing an...

https://connect.mayoclinic.org/comment/783396/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

Comment

I have had elevated RBC, WBC, Hemocrit and Hemaglobin for almost three years but am negative...

https://connect.mayoclinic.org/comment/1257432/

Discussion: JAK2 negative test results

Support Group: Blood Cancers & Disorders

Posted: Mar 13 9:57pm

Comment

Hi, I found your post and was just wondering how you got to have bone marrow...

https://connect.mayoclinic.org/comment/1219760/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 12:44pm

Comment

I am ET JAK2+ and 79 years old. I too have experienced the sharp, sudden headaches....

https://connect.mayoclinic.org/comment/1286785/

Discussion: How long you can live taking Hydrea (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 21 12:55pm

Comment

I don't live in a big city, but when I got my PV diagnosis I got...

https://connect.mayoclinic.org/comment/870438/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Comment

My platelets have been increasing since 2018 and are currently at 610. My bloodwork confirmed the...

https://connect.mayoclinic.org/comment/829902/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023