Blood Cancers & Disorders Support Group

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Comment

I’m 56 and started in Nov with one pill a day. When I reached 842 that...

https://connect.mayoclinic.org/comment/1014323/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

Comment

My husband was just told by the hematologist he was referred to that he has Jak2...

https://connect.mayoclinic.org/comment/328590/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Comment

@misty45 Thank you so very much for sharing your ET experience. My daughter ( age 39)...

https://connect.mayoclinic.org/comment/194272/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

Comment

About 6 months ago a blood test showed very high platelet counts. Next, I tested positive...

https://connect.mayoclinic.org/comment/1236870/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 1:32pm

Comment

They have differentiated treatment for CALR's slightly, and I'm hoping that all of us who were...

https://connect.mayoclinic.org/comment/1313362/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 26 12:45pm

Comment

My doctor says platelets should be between 140 - 450. I have heard different ranges but...

https://connect.mayoclinic.org/comment/1029002/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2024

Comment

I’m female, 63, with MPL mutation. My platelets were 1073 in February 2022, now 453. Pretty...

https://connect.mayoclinic.org/comment/1007243/

Discussion: Anyone else with ET have mutation in MPL gene?

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2024

Comment

I was 75 and noticed severe itching after swim/bath. PC was uninterested in elevated hematocrit(57), but...

https://connect.mayoclinic.org/comment/885884/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Comment

Hi @leanne1 Thank you so much for sharing your hemoglobin tester info with us! There are...

https://connect.mayoclinic.org/comment/878222/

Discussion: Diagnosed with PV: Anyone used a home hemoglobin testing kit?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

Comment

JAK2 Myelofibrosis I have been on Ojjarra for almost three months. It is a half dose...

https://connect.mayoclinic.org/comment/1210536/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 10:06am