Blood Cancers & Disorders Support Group

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Comment

Hello everyone, At first, they thought I had MDS, but then another doctor said CCUS. My...

https://connect.mayoclinic.org/comment/1138386/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2024

Comment

My husband has the same form of MDS. He has been on Lucpatercept injections for over...

https://connect.mayoclinic.org/comment/1082395/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2024

Comment

Hi @shels93 It’s good to see you pop up again. The last time we spoke was...

https://connect.mayoclinic.org/comment/950192/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

Comment

My husband was just diagnosed with MDS, and probably needless to say we are at a...

https://connect.mayoclinic.org/comment/757101/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

Comment

Hi, I saw this on the supraclavicular and finally looked it up. I have had a...

https://connect.mayoclinic.org/comment/1367865/

Discussion: What causes persistent swelling in the left supraclavicular?

Support Group: Blood Cancers & Disorders

Posted: Aug 10 4:11pm

Comment

Hi There... Was diagnosed about a month ago with MDS. I also have a DDX41 mutation...

https://connect.mayoclinic.org/comment/1188060/

Discussion: Does anyone else have AML with ddx41 genetic mutation?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2024

Comment

I have been diagnosed with CCUS, too. I don't really know anything about how genes are...

https://connect.mayoclinic.org/comment/1135342/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2024

Comment

Hi there, I have MDS/MPN overlap. I have the JAK2 mutation and have been on 500...

https://connect.mayoclinic.org/comment/1027326/

Discussion: Pain in Upper Left Abdomen

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2024

Comment

Hi @cherbarn. I’m sure this is shock for you coming on the heels of your back...

https://connect.mayoclinic.org/comment/1095046/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024

Comment

Hi Kat! Wow, 52 days already? That’s crazy how fast the time has flown. Congratulations on...

https://connect.mayoclinic.org/comment/1078942/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 1, 2024