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1,181 total results
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Discussions (76)
Comments (1,105)
Comment
Recent update: I was diagnosed 3 years ago/ Jak2 mutation. I had already had a small...
https://connect.mayoclinic.org/comment/982523/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Dec 18, 2023
Comment
Hi, I was diagnosed with ET January 2025 after routine physical from high platelets in lab...
https://connect.mayoclinic.org/comment/1347917/
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Discussion:
What to look for if ET is progressing to something else.
Support Group:
Blood Cancers & Disorders
Posted: 4 days ago
Comment
Cristinia, I also feel lucky that of all cancers I could I acquired PV. My husband...
https://connect.mayoclinic.org/comment/1278598/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Apr 10 11:02am
Comment
Good morning, @paisleyshakell. From my personal experience of having an aggressive form of leukemia with three...
https://connect.mayoclinic.org/comment/1122731/
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Discussion:
Thrombocythemia JAK2 - is it ok to have an MRI with dye?
Support Group:
Blood Cancers & Disorders
Posted: Aug 13, 2024
Comment
I’m 56 and started in Nov with one pill a day. When I reached 842 that...
https://connect.mayoclinic.org/comment/1014323/
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Discussion:
Essential Thrombocytosis: What amount of hydroxy do you take?
Support Group:
Blood Cancers & Disorders
Posted: Feb 12, 2024
Comment
My husband was just told by the hematologist he was referred to that he has Jak2...
https://connect.mayoclinic.org/comment/328590/
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Discussion:
JAK2 Mutation, Low Iron and High Platelet count
Support Group:
Blood Cancers & Disorders
Posted: Feb 16, 2021
Comment
@misty45 Thank you so very much for sharing your ET experience. My daughter ( age 39)...
https://connect.mayoclinic.org/comment/194272/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Jan 20, 2019
Comment
I was 75 and noticed severe itching after swim/bath. PC was uninterested in elevated hematocrit(57), but...
https://connect.mayoclinic.org/comment/885884/
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Discussion:
I am curious: What symptoms did everyone have in the beginning for PV?
Support Group:
Blood Cancers & Disorders
Posted: Jun 27, 2023
Comment
Hi @leanne1 Thank you so much for sharing your hemoglobin tester info with us! There are...
https://connect.mayoclinic.org/comment/878222/
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Discussion:
Diagnosed with PV: Anyone used a home hemoglobin testing kit?
Support Group:
Blood Cancers & Disorders
Posted: Jun 14, 2023
Comment
JAK2 Myelofibrosis I have been on Ojjarra for almost three months. It is a half dose...
https://connect.mayoclinic.org/comment/1210536/
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Discussion:
What are treatments for myelofibrosis?
Support Group:
Blood Cancers & Disorders
Posted: Jan 13 10:06am
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