Blood Cancers & Disorders Support Group

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Comment

I am 72, have ET with JAK2, and been on Droxia for 10 years. My dosage...

https://connect.mayoclinic.org/comment/1119845/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 8 6:22am

Comment

Sounds like Becky has been through quite a lot. I am looking at mitral valve repair,...

https://connect.mayoclinic.org/comment/1154916/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Oct 10 11:32am

Comment

My platelets have increased over the past few months, now seeing a hematologist who just confirmed...

https://connect.mayoclinic.org/comment/833990/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

Comment

I have ET Jak2 and I understand that we all react differently to medications....I have seen...

https://connect.mayoclinic.org/comment/966274/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2023

Comment

I've been taking 600mgs of hydroxyurea (Droxia formulation) daily for myelofibrosis for the past 6 yrs....

https://connect.mayoclinic.org/comment/1080798/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 4 1:52pm

Comment

It's my understanding that PV IS a blood cancer, it's a progressive disease with no cure..There...

https://connect.mayoclinic.org/comment/1086347/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13 3:57pm

Comment

My platelets were normal until I started the Covid vaccines. I have talked with my oncologist...

https://connect.mayoclinic.org/comment/1035227/

Discussion: Do vaccines like MMR or TB tests affect Bone Marrow Biopsy findings?

Support Group: Blood Cancers & Disorders

Posted: Mar 17 12:36pm

Comment

Good question! I have been going over this in my mind for a couple of weeks....

https://connect.mayoclinic.org/comment/788217/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022

Comment

Hello! So I was recently diagnosed with ET as my platelets rose from 300-to 650 in...

https://connect.mayoclinic.org/comment/781132/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022

Comment

I am 65 JAK2 positive ET. My hematologist has me on low dose aspirin (1 per...

https://connect.mayoclinic.org/comment/778819/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022