Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

906 total results

Comment

Hi Howard…thinking about you this morning as you start your new treatment! I know how scary...

https://connect.mayoclinic.org/comment/828888/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Comment

Thanks for the question. I was diagnosed with Thrombocytosis, Essential Thrombocythemia and JAK2 gene mutation over...

https://connect.mayoclinic.org/comment/328592/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Comment

My husband was first diagnosed with MM because of low white blood counts. Now after 3...

https://connect.mayoclinic.org/comment/296800/

Discussion: Leukopenia ( low white blood count)

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2020

Comment

Hi there, I was diagnosed with ET last March. My platelets were 1,200. I began taking...

https://connect.mayoclinic.org/comment/1035173/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024

Comment

Doctors and diagnoses are so confusing. I to have just recently been told I have myelofibrosis...

https://connect.mayoclinic.org/comment/1364020/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 5 7:49am

Comment

No idea either what "extended" means... but my husband also has MDS 5q deletion, diagnosed late...

https://connect.mayoclinic.org/comment/1215894/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 18 4:11pm

Comment

I too, have MDS. My platelets go up and down too, but as yet they haven't...

https://connect.mayoclinic.org/comment/1054226/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

Comment

Hi, Thank you for your very good information but I had already read it and it...

https://connect.mayoclinic.org/comment/1348639/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 15 9:15am

Comment

Thanks! The 11.3 after starting Revlimid was a blessing since I was at 8.7 two days...

https://connect.mayoclinic.org/comment/1368902/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 12 8:54am

Comment

I am not having electrophoresis. Other people may have this treatment. I know there’s chemo oral...

https://connect.mayoclinic.org/comment/1164882/

Discussion: Diagnosed with Mycosis fungoides. Don’t understand what to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2024