Blood Cancers & Disorders Support Group

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Comment

Hi @kbc. It’s understandable how some events can feel more than coincidental. From my research over...

https://connect.mayoclinic.org/comment/1020755/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Feb 22 7:09pm

Comment

Just to add my two cents that may be helpful: My wife has recently been diagnosed...

https://connect.mayoclinic.org/comment/1152194/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Oct 5 7:25am

Comment

Hi Steve, Becky has the JAK2 mutation which, from my understanding, makes primary ET more likely,...

https://connect.mayoclinic.org/comment/1154236/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Oct 8 10:02pm

Comment

I traveled as usual and flew places in 2020 and enjoyed many wonderful experiences with family...

https://connect.mayoclinic.org/comment/194376/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2021

Comment

My husband was dx with Jak2 about 10 months go when his WBC was high on...

https://connect.mayoclinic.org/comment/599791/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021

Comment

A GP is not going to have any answers for you. They do not specialize in...

https://connect.mayoclinic.org/comment/328574/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2020

Comment

Welcome to Connect, @johngrudnowski. I’m a little envious to see you’re in Costa Rica…sunshine and warmth!...

https://connect.mayoclinic.org/comment/999949/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 19 8:44am

Comment

Hi, Thanks for your input. I have JAK2 mutation too, just found out in April. How...

https://connect.mayoclinic.org/comment/987914/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Comment

Hi Vicky58, There’s a large network of members in Connect who also have ET and share...

https://connect.mayoclinic.org/comment/1102781/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 10 8:39am

Comment

My father passed away from a battle of myelofibrosis (MF), over 10 years after being diagnosed...

https://connect.mayoclinic.org/comment/646343/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2021