Blood Cancers & Disorders Support Group

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Comment

You must have so many questions! You might want to use the search bar at the...

https://connect.mayoclinic.org/comment/1244801/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Feb 24 4:20pm

Comment

Hi @winmil99, Many medications have a rebound effect if stopped abruptly. The same goes for HU...

https://connect.mayoclinic.org/comment/1038999/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2024

Comment

I was originally diagnosed with ET based on a positive JAK2 bloid test. I asked the...

https://connect.mayoclinic.org/comment/194320/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

Comment

I have JAK2 and take 1000mg of HU and it has affected my hair. It grows...

https://connect.mayoclinic.org/comment/1317294/

Discussion: Regrowing hair

Support Group: Blood Cancers & Disorders

Posted: May 31 12:21pm

Comment

Hi @nyjean. Hopefully I can answer your question about PV and ET. Those two conditions, along...

https://connect.mayoclinic.org/comment/1066510/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Comment

Hi Kevin -- Recently diagnosed with ET with numbers close to yours. Have you had genetic...

https://connect.mayoclinic.org/comment/1039634/

Discussion: Im 64 and my blood platelets have been in the low 530-550 range for yr

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2024

Comment

I’m 57 Jak2+ with PV and no other risks factors for clotting thus far so that’s...

https://connect.mayoclinic.org/comment/1025967/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Comment

Hi @tokyolin, I am following up on Lori’s comments to you. I was diagnosed a year...

https://connect.mayoclinic.org/comment/882028/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

Comment

I was diagnosed PV in April ‘22, with JAK2 gene. Bloodlettings and Hydroxurea were prescribed. The...

https://connect.mayoclinic.org/comment/793807/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

Comment

Hi lyd0218, Please share what you find out about if they can tell if you are...

https://connect.mayoclinic.org/comment/1314907/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 28 12:25pm