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1,205 total results
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Discussions (77)
Comments (1,128)
Comment
Polycythemia vera (PV) is primarily classified as a blood disorder, but it has characteristics of a...
https://connect.mayoclinic.org/comment/1114380/
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Discussion:
Been struggling with Polycythemia Vera for 2 years
Support Group:
Blood Cancers & Disorders
Posted: Jul 30, 2024
Comment
I have posted before about having JAK2 mutation - I have been followed by Hemo-oncologist for...
https://connect.mayoclinic.org/comment/975372/
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Discussion:
Jak 2 mutations
Support Group:
Blood Cancers & Disorders
Posted: Dec 5, 2023
Comment
Hi Lorne…welcome to the site, Are you taking it with a full glass of water? Are...
https://connect.mayoclinic.org/comment/792340/
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Discussion:
Any recommendations for ongoing mild headaches with Hydroxyurea?
Support Group:
Blood Cancers & Disorders
Posted: Jan 4, 2023
Comment
Thank you I am looking into many things at the moment, perhaps a clinical trial for...
https://connect.mayoclinic.org/comment/50502/
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Discussion:
Myelofibrosis w/ JAK2 mutation
Support Group:
Blood Cancers & Disorders
Posted: Jul 17, 2011
Comment
My platelets numbers were similar to yours in January, plus blood work identified a Jak2 mutation....
https://connect.mayoclinic.org/comment/988747/
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Discussion:
Essential Thrombocytosis symptoms
Support Group:
Blood Cancers & Disorders
Posted: Dec 30, 2023
Comment
We’ve been monitoring my platelets for 11 years. They are always above the normal of 450....
https://connect.mayoclinic.org/comment/1319552/
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Discussion:
High Platelets
Support Group:
Blood Cancers & Disorders
Posted: Jun 3 3:26pm
Comment
What I learned talking with other patients and my doc: If you have the CALR mutation,...
https://connect.mayoclinic.org/comment/1136530/
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Discussion:
What about no treatment for ET?
Support Group:
Blood Cancers & Disorders
Posted: Sep 5, 2024
Comment
My brother and I both have the mutation courtesy of the JAK2 which resulted in no...
https://connect.mayoclinic.org/comment/1047855/
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Discussion:
Essential Thrombocytosis symptoms
Support Group:
Blood Cancers & Disorders
Posted: Apr 9, 2024
Comment
I have ET with JAK2 mutation. It took 22 weeks taking 500mg HU once daily to...
https://connect.mayoclinic.org/comment/1036856/
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Discussion:
Started Hydroxyurea: How long to see decrease in counts?
Support Group:
Blood Cancers & Disorders
Posted: Mar 20, 2024
Comment
I have ET/Jak2. Low iron but I am not anemic. The fatigue did not start until...
https://connect.mayoclinic.org/comment/1017214/
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Discussion:
Essential Thrombocythemia: Making treatment decisions
Support Group:
Blood Cancers & Disorders
Posted: Feb 17, 2024
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