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1,181 total results
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Discussions (76)
Comments (1,105)
Comment
You may find that despite having the JAK2 mutation, your life may not be any noticeably...
https://connect.mayoclinic.org/comment/194269/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Dec 26, 2018
Comment
What I learned talking with other patients and my doc: If you have the CALR mutation,...
https://connect.mayoclinic.org/comment/1136530/
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Discussion:
What about no treatment for ET?
Support Group:
Blood Cancers & Disorders
Posted: Sep 5, 2024
Comment
My brother and I both have the mutation courtesy of the JAK2 which resulted in no...
https://connect.mayoclinic.org/comment/1047855/
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Discussion:
Essential Thrombocytosis symptoms
Support Group:
Blood Cancers & Disorders
Posted: Apr 9, 2024
Comment
I have ET with JAK2 mutation. It took 22 weeks taking 500mg HU once daily to...
https://connect.mayoclinic.org/comment/1036856/
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Discussion:
Started Hydroxyurea: How long to see decrease in counts?
Support Group:
Blood Cancers & Disorders
Posted: Mar 20, 2024
Comment
I have ET/Jak2. Low iron but I am not anemic. The fatigue did not start until...
https://connect.mayoclinic.org/comment/1017214/
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Discussion:
Essential Thrombocythemia: Making treatment decisions
Support Group:
Blood Cancers & Disorders
Posted: Feb 17, 2024
Comment
Hi @jewelfaux. The JAK2 mutation can be discovered/diagnosed with blood work. It isn’t necessary to have...
https://connect.mayoclinic.org/comment/975772/
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Discussion:
Jak 2 mutations
Support Group:
Blood Cancers & Disorders
Posted: Dec 6, 2023
Comment
I had platelets up to 600 and hemocrit top level to where they would take off...
https://connect.mayoclinic.org/comment/943780/
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Discussion:
Pros and Cons of JAK2 testing
Support Group:
Blood Cancers & Disorders
Posted: Oct 7, 2023
Comment
I was diagnosed with MDS in 2021. In March 2023 my platelets shot up to over...
https://connect.mayoclinic.org/comment/846781/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Apr 21, 2023
Comment
Your hemo's dosing strategy is interesting, and I might ask mine about that. How often do...
https://connect.mayoclinic.org/comment/779191/
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Discussion:
How did you make the final decision to begin HU protocol for ET?
Support Group:
Blood Cancers & Disorders
Posted: Nov 30, 2022
Comment
My platelets numbers were similar to yours in January, plus blood work identified a Jak2 mutation....
https://connect.mayoclinic.org/comment/988747/
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Discussion:
Essential Thrombocytosis symptoms
Support Group:
Blood Cancers & Disorders
Posted: Dec 30, 2023
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