Blood Cancers & Disorders Support Group

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Comment

Just found this forum. Not sure how to participate except to say that I'm in my...

https://connect.mayoclinic.org/comment/833564/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2023

Comment

I was having increasingly high monocytes and then my platletts were low so my oncologist (I...

https://connect.mayoclinic.org/comment/987843/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Comment

Welcome to the group. I have had success controlling my blood sugar with Octreotide (Sandostatin LAR...

https://connect.mayoclinic.org/comment/1180040/

Discussion: Neuroendocrine insulinoma and MDS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2024

Comment

Hi there - I am 70 years young & just diagnosed with MDS IB2. My hematologist...

https://connect.mayoclinic.org/comment/1266510/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25 11:47am

Comment

Hi @pathilt, I just wanted to check in with you to see how your sister is...

https://connect.mayoclinic.org/comment/1112602/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

Comment

Hi Hollie, I have MDS type Ib2. It’s more ‘high risk’ having to do with number...

https://connect.mayoclinic.org/comment/1313323/

Discussion: MDS types: How did you find out what type you have?

Support Group: Blood Cancers & Disorders

Posted: May 26 11:59am

Comment

I’m not really able to give you much guidance as to your type of MDS and...

https://connect.mayoclinic.org/comment/1085200/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2024

Comment

Sharyn, it’s good you’re on the antibiotics. But if you don’t notice an improvement in another...

https://connect.mayoclinic.org/comment/756163/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2022

Comment

Good morning, @jenn2458 I’m so sorry your dad isn’t doing well with his treatments for MDS....

https://connect.mayoclinic.org/comment/1239685/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 18 8:07am

Comment

Hi Brenda, I was diagnosed as having “presumptive” MDS in February 2011. I had no symptoms...

https://connect.mayoclinic.org/comment/961018/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023