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1,181 total results
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Discussions (76)
Comments (1,105)
Comment
Hi cowestwinds, I am 78 with ET JAK2. After starting Hydroxyurea 500 mg daily in June...
https://connect.mayoclinic.org/comment/792191/
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Discussion:
High platelets, Jak2, ET, and pre-fib new diagnosis
Support Group:
Blood Cancers & Disorders
Posted: Jan 4, 2023
Comment
Thanks! I appreciate your story. I do know that progression to MF is likely if you...
https://connect.mayoclinic.org/comment/1329713/
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Discussion:
Starting 17th year with ET. What's ahead?
Support Group:
Blood Cancers & Disorders
Posted: Jun 18 9:06am
Comment
Good morning, @pinkflamingo. Your @name made me smile and think fondly of Florida this spring morning....
https://connect.mayoclinic.org/comment/836087/
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Discussion:
Blood Cancer - JAK2 - Autoimmune- Confusion
Support Group:
Blood Cancers & Disorders
Posted: Apr 2, 2023
Comment
I didn't like varying my HU dosage from 500mgs to 1000mgs from day to day; I...
https://connect.mayoclinic.org/comment/1148733/
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Discussion:
Need help newly diagnosed with a high platelet count and the JAK2 gene
Support Group:
Blood Cancers & Disorders
Posted: Sep 28, 2024
Comment
Polycythemia vera (PV) is primarily classified as a blood disorder, but it has characteristics of a...
https://connect.mayoclinic.org/comment/1114380/
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Discussion:
Been struggling with Polycythemia Vera for 2 years
Support Group:
Blood Cancers & Disorders
Posted: Jul 30, 2024
Comment
I have posted before about having JAK2 mutation - I have been followed by Hemo-oncologist for...
https://connect.mayoclinic.org/comment/975372/
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Discussion:
Jak 2 mutations
Support Group:
Blood Cancers & Disorders
Posted: Dec 5, 2023
Comment
Hi Lorne…welcome to the site, Are you taking it with a full glass of water? Are...
https://connect.mayoclinic.org/comment/792340/
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Discussion:
Any recommendations for ongoing mild headaches with Hydroxyurea?
Support Group:
Blood Cancers & Disorders
Posted: Jan 4, 2023
Comment
Thank you I am looking into many things at the moment, perhaps a clinical trial for...
https://connect.mayoclinic.org/comment/50502/
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Discussion:
Myelofibrosis w/ JAK2 mutation
Support Group:
Blood Cancers & Disorders
Posted: Jul 17, 2011
Comment
I am 71 yo female, reasonably active, recently diagnosed with Jak2, with platelets rising to 750...
https://connect.mayoclinic.org/comment/887265/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jun 29, 2023
Comment
My Polycythemia Vera and JAK2 positive test and diagnosis was on Nov. 25, 2022. After starting...
https://connect.mayoclinic.org/comment/803537/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Jan 29, 2023
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