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Comment

I have been on low dose Hydroxy for 2 months now - do notice small mouth...

https://connect.mayoclinic.org/comment/966488/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2023

Comment

Hi milkweed, My hematologist recently suggested Anagrelide to me because I have had headaches taking Hydroxyurea....

https://connect.mayoclinic.org/comment/862257/

Discussion: Anagrelide: Do you switch? How to cover costs?

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

Comment

I was diagnosed in December of this past year. Same thing, Jak2 mutation. I tried some...

https://connect.mayoclinic.org/comment/845763/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Comment

Hi cowestwinds, I am 78 with ET JAK2. After starting Hydroxyurea 500 mg daily in June...

https://connect.mayoclinic.org/comment/792191/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

Comment

I do have a question. I was just diagnosed with JAK2 ET. Platelets at 790 and...

https://connect.mayoclinic.org/comment/1298528/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 6 7:15pm

Comment

Hey Lisa! I have pretty Much all The same Symptoms and am JAK2 pos. My platelets...

https://connect.mayoclinic.org/comment/1162393/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Comment

Re: connection between PAD and PV....I have been diagnosed recently with both PAD and PV. I...

https://connect.mayoclinic.org/comment/928250/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Comment

Hello themyth, I have been able to work a very physical job. I did and do...

https://connect.mayoclinic.org/comment/821972/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

Thanks! I appreciate your story. I do know that progression to MF is likely if you...

https://connect.mayoclinic.org/comment/1329713/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 18 9:06am

Comment

I didn't like varying my HU dosage from 500mgs to 1000mgs from day to day; I...

https://connect.mayoclinic.org/comment/1148733/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2024