Blood Cancers & Disorders Support Group

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Comment

Hi @pennyhedgecoth and welcome to the Blood Cancers & Disorders group. I'm glad you found us....

https://connect.mayoclinic.org/comment/329372/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2020

Comment

My 68 year old friend had a pulmonary embolism on 5/18/22. This was two weeks after...

https://connect.mayoclinic.org/comment/1122553/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 13 2:05am

Comment

Hi Kelly, I too am Jak2 positive with PV diagnosed at 55 on Hydroxyurea now for...

https://connect.mayoclinic.org/comment/1127238/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 20 8:10am

Comment

Hello, I am 1.5 years into taking it. My platelets were 950 as well and I...

https://connect.mayoclinic.org/comment/950065/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

Comment

My JAK2 Mutation was discovered 11 years ago, quite by accident. I never had any symptoms....

https://connect.mayoclinic.org/comment/194343/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2019

Comment

My hematologist said it's in the MPN cancer family but it doesn't work like a cancer....

https://connect.mayoclinic.org/comment/995692/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 11 4:34pm

Comment

I also had my platelets jump from 400 to 600 to 700 after 5 COVID shots....

https://connect.mayoclinic.org/comment/934091/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2023

Comment

I was diagnoses with ET Jak2 in jaune 2024, I am 70, jog and exercise daily,...

https://connect.mayoclinic.org/comment/1025941/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 2 9:00am

Comment

You are absolutely correct on doctors taking time before they can figure out the problem with...

https://connect.mayoclinic.org/comment/1064567/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 9 4:35am

Comment

Good morning Pumpkin.....I posted a message to you the other day but I think I touched...

https://connect.mayoclinic.org/comment/774152/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2022