Blood Cancers & Disorders Support Group

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Comment

I also had hair thinning and nail splintering. My hair is straighter, but not falling out....

https://connect.mayoclinic.org/comment/818157/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2023

Comment

Hi @judyar I am 79, have ET JAK2 mutation. I have been taking 500 mg Hydroxyurea...

https://connect.mayoclinic.org/comment/973207/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2023

Comment

ET - prefibrotic myelofibrosis JAK2 - Chronic Myeloproliferative disease on 26th day HU 500mg per day...

https://connect.mayoclinic.org/comment/901889/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2023

Comment

Colleen, thank you for asking. Very fortunate that all my other blood work is within acceptable...

https://connect.mayoclinic.org/comment/693590/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2022

Comment

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

Comment

Get on the email list for the MPN Foundation and watch their excellent programs and videos....

https://connect.mayoclinic.org/comment/946029/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

Comment

@momz I was diagnosed with MDS with Refractory Anemia and multi lineage dysplasia in February 2021....

https://connect.mayoclinic.org/comment/926928/

Discussion: Living with MDS

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

Comment

Hello All, Here is a wonderful booklet for you to read. It may look too complicated...

https://connect.mayoclinic.org/comment/1048088/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 9 6:52pm

Comment

My doctor has taken time to figure out the problem with my raised platelets. I have...

https://connect.mayoclinic.org/comment/1064569/

Discussion: Essential Thrombocythemia and stroke: Do you have TIAs?

Support Group: Blood Cancers & Disorders

Posted: May 9 4:48am

Comment

hey carlavan. i am soo sorry to here about you but i can feel you because...

https://connect.mayoclinic.org/comment/758124/

Discussion: CalR mutation ET and constitutional symptoms

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2022