Blood Cancers & Disorders Support Group

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Comment

I also have ET JAK2 diagnosed in June 2023 at age 72. Platelets were higher than...

https://connect.mayoclinic.org/comment/1312680/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 25 2:51pm

Comment

Hi @cindyem I just read another comment you posted about having PV and anemia. From information...

https://connect.mayoclinic.org/comment/884148/

Discussion: Does anyone have information on PV with a low hemoglobin/ red count

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

Comment

Hey Lisa! I have pretty Much all The same Symptoms and am JAK2 pos. My platelets...

https://connect.mayoclinic.org/comment/1162393/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Comment

Re: connection between PAD and PV....I have been diagnosed recently with both PAD and PV. I...

https://connect.mayoclinic.org/comment/928250/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Comment

Hello themyth, I have been able to work a very physical job. I did and do...

https://connect.mayoclinic.org/comment/821972/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

Thank you so much for your helpful response. I used a lot of google as well...

https://connect.mayoclinic.org/comment/1036657/

Discussion: New - possible Polycythemia vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2024

Comment

Me, too. A routine blood test found high platelets, which led to a referral to a...

https://connect.mayoclinic.org/comment/974495/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2023

Comment

I have been on low dose Hydroxy for 2 months now - do notice small mouth...

https://connect.mayoclinic.org/comment/966488/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2023

Comment

Hi milkweed, My hematologist recently suggested Anagrelide to me because I have had headaches taking Hydroxyurea....

https://connect.mayoclinic.org/comment/862257/

Discussion: Anagrelide: Do you switch? How to cover costs?

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

Comment

I was diagnosed in December of this past year. Same thing, Jak2 mutation. I tried some...

https://connect.mayoclinic.org/comment/845763/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023