Blood Cancers & Disorders Support Group

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Comment

I'm also CALR. Started on 500 mg HU daily when platelets approached 800. Took a year...

https://connect.mayoclinic.org/comment/881192/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2023

Comment

Hi @amyb52. Welcome to Connect. This is a great forum for meeting other members who share...

https://connect.mayoclinic.org/comment/882031/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

Comment

I myself noticed that my red red and white cells were increasing over time..When I brought...

https://connect.mayoclinic.org/comment/1086304/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 13 2:24pm

Comment

Good morning, @onthejoedock ( and Mrs Joe!) I’m a bit chagrinned that I’d forgotten about our...

https://connect.mayoclinic.org/comment/1083472/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 9 9:22am

Comment

Hi there, Yes, this diagnosis does seem to be extremely rare! I don't qualify for RARS-T...

https://connect.mayoclinic.org/comment/865772/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

Comment

1. Thank you for your service. I, too, was in the Navy a long time ago!...

https://connect.mayoclinic.org/comment/890649/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Comment

I am 79 and was also diagnosed with ET JAK2 in June 2022. I was already...

https://connect.mayoclinic.org/comment/967863/

Discussion: Lightheaded with ET

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

Comment

Thanks for the question. I was diagnosed with Thrombocytosis, Essential Thrombocythemia and JAK2 gene mutation over...

https://connect.mayoclinic.org/comment/328592/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Comment

I have essential thrombocythemia, with JAK2 gene. Diagnosed in 2022 after a emergency gall bladder operation....

https://connect.mayoclinic.org/comment/1020141/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 21 8:12pm

Comment

I had the same issue. My platelet count started at 400 and started rising after I...

https://connect.mayoclinic.org/comment/1019562/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 5:59am