Blood Cancers & Disorders Support Group

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Comment

Were you originally diagnosed by extensive labs and a bone marrow biopsy? Are you seeing an...

https://connect.mayoclinic.org/comment/783396/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

Comment

Jackt00, To answer your question…when the headaches started I had some dizziness and a first ever...

https://connect.mayoclinic.org/comment/830153/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

Comment

Hello, I have had PV with JAK2 for about 5 years. I work and live a...

https://connect.mayoclinic.org/comment/812063/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2023

Comment

Hi Eileen, I have been on Pegasus for 7 weeks, at a dosage of 45 mcg...

https://connect.mayoclinic.org/comment/807552/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

Comment

Your platelet level must be fairly low if starting HU is being left up to you....

https://connect.mayoclinic.org/comment/995371/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 11 7:18am

Comment

there is a naturopathic drug called "lumbrokinase " old Chinese medicine. I am going to start...

https://connect.mayoclinic.org/comment/1021025/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 23 9:12am

Comment

I started out taking HU 1x week for a month, 2x week for 8 months, and...

https://connect.mayoclinic.org/comment/1006203/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 9:04pm

Comment

Hi Gary. You’re right, statistically women do appear to outnumber men with ET cases. So, welcome...

https://connect.mayoclinic.org/comment/1117103/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3 1:14pm

Comment

I was diagnosed with ET at 37 with platelets at 890. I started on aspirin only...

https://connect.mayoclinic.org/comment/792965/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2023

Comment

Welcome to this "new planet" @cmcj. To help you connect with others, I moved your post...

https://connect.mayoclinic.org/comment/891068/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023