Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

991 total results

Comment

Hi @leanne1 Thank you so much for sharing your hemoglobin tester info with us! There are...

https://connect.mayoclinic.org/comment/878222/

Discussion: Diagnosed with PV: Anyone used a home hemoglobin testing kit?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

Comment

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14 10:28am

Comment

Recently diagnosed in November with pv/et, jak2+. Originally on hydrox 1000 daily with phlebotomy x 3...

https://connect.mayoclinic.org/comment/821163/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

Comment

I don't live in a big city, but when I got my PV diagnosis I got...

https://connect.mayoclinic.org/comment/870438/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Comment

My platelets have been increasing since 2018 and are currently at 610. My bloodwork confirmed the...

https://connect.mayoclinic.org/comment/829902/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

Comment

New to this group. I've been diagnosed with an MPN ET with JAK2. Doctor has put...

https://connect.mayoclinic.org/comment/1192587/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: 14 hours ago

Comment

my plt also started increasing with covid vaccines . I have had bone marrow biopsy, JAK2...

https://connect.mayoclinic.org/comment/1170559/

Discussion: Do vaccines like MMR or TB tests affect Bone Marrow Biopsy findings?

Support Group: Blood Cancers & Disorders

Posted: Nov 9 9:13am

Comment

What dosage have you been prescibed? ET patients usually only need very low dosages of hydrea....

https://connect.mayoclinic.org/comment/1172215/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 12 9:35am

Comment

Hi, I have ET JAK2, but am not taking HU due to my age and other...

https://connect.mayoclinic.org/comment/830670/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2023

Comment

Hi I was newly diagnosed with this and am waiting to start on medication. I am...

https://connect.mayoclinic.org/comment/821798/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023