Blood Cancers & Disorders Support Group

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Comment

I'm 79 male and burdened with 5 mutuated chromosome that manife s ted into MDS/AML having...

https://connect.mayoclinic.org/comment/1183124/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

Comment

I really don’t want to jump in on this site but my husband’s doctor told us...

https://connect.mayoclinic.org/comment/1111404/

Discussion: T cell large granulocytic leukemia

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Comment

Hi, @5qdeletion. There are treatments for AML for patients who are older or unable to have...

https://connect.mayoclinic.org/comment/1030665/

Discussion: I just discovered I have leukemia

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

Comment

Welcome to Connect, @grat1963. Oh my gosh, it’s so sad to hear about your sister and...

https://connect.mayoclinic.org/comment/1342943/

Discussion: MDS now progressing to AML and need to decide if time to start Vidaza

Support Group: Blood Cancers & Disorders

Posted: Jul 7 10:21am

Comment

soonerfan. Thank you for posting. I'm at City of Hope in California. Who knew i would...

https://connect.mayoclinic.org/comment/1065951/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 11, 2024

Comment

My husband apparently had MGUS for about 5 years but we didn’t really know it until...

https://connect.mayoclinic.org/comment/959673/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

Comment

I also have mds/rars diagnosis. Started aranesp shots every other week and have had 2 iron...

https://connect.mayoclinic.org/comment/870886/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

Comment

Hello. I was diagnosed at age 49 with CCUS back in September after a bone marrow...

https://connect.mayoclinic.org/comment/980353/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

Comment

Hello @jrwilli1, I am sorry that your husband's situation is so difficullt. I can only suggest...

https://connect.mayoclinic.org/comment/951249/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2023

Comment

Ironically I just reached out to my husband’s team to ask about a new “rash” on...

https://connect.mayoclinic.org/comment/950088/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023