Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Blood Cancers & Disorders Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
1,182 total results
All
Discussions (76)
Comments (1,106)
Comment
I met with new oncologist/hema this week. I will be getting a bone marrow biopsy, as...
https://connect.mayoclinic.org/comment/651545/
Copy link to clipboard
Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Nov 5, 2021
Comment
Hello, many people choose not to have the bone marrow test. PV can be diagnosed solely...
https://connect.mayoclinic.org/comment/1156731/
Copy link to clipboard
Discussion:
After 3 months on hydroxyurea, I am going to ask to switch to Besremi
Support Group:
Blood Cancers & Disorders
Posted: Oct 14, 2024
Comment
I have read the risks for AML with ET. It is low, but can happen. One...
https://connect.mayoclinic.org/comment/1022379/
Copy link to clipboard
Discussion:
Essential Thrombocythemia: Making treatment decisions
Support Group:
Blood Cancers & Disorders
Posted: Feb 25, 2024
Comment
HU is short for hydroxyurea or Hydrea. It is in pill form and suppresses blood cells,...
https://connect.mayoclinic.org/comment/252000/
Copy link to clipboard
Discussion:
High platelet count: What does this mean?
Support Group:
Blood Cancers & Disorders
Posted: Feb 27, 2019
Comment
Thanks to everyone on this forum , I was diagnosed with two mutations middle last year,...
https://connect.mayoclinic.org/comment/1285436/
Copy link to clipboard
Discussion:
What are most common side effects when starting HU (Hydroxyurea)?
Support Group:
Blood Cancers & Disorders
Posted: Apr 19 12:28pm
Comment
Hi just a quick update on my treatment, I was diagnosed with two mutt Jak2 and...
https://connect.mayoclinic.org/comment/1347124/
Copy link to clipboard
Discussion:
I have JAK2 ET and MPN: Anyone else have these symptoms?
Support Group:
Blood Cancers & Disorders
Posted: Jul 13 10:43am
Comment
Hello, dear people....good to meet you.... I'm newly diagnosed PV...and just trying to navigate all this....
https://connect.mayoclinic.org/comment/858478/
Copy link to clipboard
Discussion:
Polycythemia vera (PV): Does altitude matter?
Support Group:
Blood Cancers & Disorders
Posted: May 12, 2023
Comment
Sorry for the delayed response, yes…tested for 25 mutations…I have 8.. including Jak2 and ASXL1 but...
https://connect.mayoclinic.org/comment/656013/
Copy link to clipboard
Discussion:
JAK2 ASXL1 Mutations: Anyone else?
Support Group:
Blood Cancers & Disorders
Posted: Nov 20, 2021
Comment
Hi @jola13 Headaches are so miserable and it sounds like you have a doozy. I looked...
https://connect.mayoclinic.org/comment/896933/
Copy link to clipboard
Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jul 16, 2023
Comment
A quick synopsis of my situation… In late 2020 I felt a minor dizziness and my...
https://connect.mayoclinic.org/comment/810809/
Copy link to clipboard
Discussion:
Your tips as I prepare for first phlebotomy
Support Group:
Blood Cancers & Disorders
Posted: Feb 13, 2023
First
Previous
...
50
51
52
53
54
55
56
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect