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1,205 total results
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Discussions (77)
Comments (1,128)
Comment
I have had ET and taken hydrea for nearly 30 years now. I am currently 66...
https://connect.mayoclinic.org/comment/194374/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Feb 4, 2021
Comment
I am Jak2 and this was diagnosed after 2 mild strokes in which I experienced numbness...
https://connect.mayoclinic.org/comment/194334/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Aug 17, 2019
Comment
Thank you for your quick response. Can you help me understand a bit more?--he said the...
https://connect.mayoclinic.org/comment/194309/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Apr 12, 2019
Comment
Hi @jola13 Headaches are so miserable and it sounds like you have a doozy. I looked...
https://connect.mayoclinic.org/comment/896933/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jul 16, 2023
Comment
A quick synopsis of my situation… In late 2020 I felt a minor dizziness and my...
https://connect.mayoclinic.org/comment/810809/
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Discussion:
Your tips as I prepare for first phlebotomy
Support Group:
Blood Cancers & Disorders
Posted: Feb 13, 2023
Comment
Hello, dear people....good to meet you.... I'm newly diagnosed PV...and just trying to navigate all this....
https://connect.mayoclinic.org/comment/858478/
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Discussion:
Polycythemia vera (PV): Does altitude matter?
Support Group:
Blood Cancers & Disorders
Posted: May 12, 2023
Comment
Sorry for the delayed response, yes…tested for 25 mutations…I have 8.. including Jak2 and ASXL1 but...
https://connect.mayoclinic.org/comment/656013/
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Discussion:
JAK2 ASXL1 Mutations: Anyone else?
Support Group:
Blood Cancers & Disorders
Posted: Nov 20, 2021
Comment
I believe PV can be managed without phlebotomies. I know this as I have had PV...
https://connect.mayoclinic.org/comment/1194508/
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Discussion:
My mom has Polycythemia Vera: Can PV be managed without phlebotomies?
Support Group:
Blood Cancers & Disorders
Posted: Dec 21, 2024
Comment
Thanks to everyone on this forum , I was diagnosed with two mutations middle last year,...
https://connect.mayoclinic.org/comment/1285436/
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Discussion:
What are most common side effects when starting HU (Hydroxyurea)?
Support Group:
Blood Cancers & Disorders
Posted: Apr 19 12:28pm
Comment
When I first saw my heme doc little over a year ago, he said not to...
https://connect.mayoclinic.org/comment/1039829/
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Discussion:
Im 64 and my blood platelets have been in the low 530-550 range for yr
Support Group:
Blood Cancers & Disorders
Posted: Mar 25, 2024
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