Blood Cancers & Disorders Support Group

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Comment

Good morning, @jenn2458 I’m so sorry your dad isn’t doing well with his treatments for MDS....

https://connect.mayoclinic.org/comment/1239685/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 18 8:07am

Comment

Very well said! The retacrit (was taking Procrit) has actually helped all blood count numbers including...

https://connect.mayoclinic.org/comment/1308480/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: May 20 10:23am

Comment

Oh my goodness, I read through the last 1.5 months. What journeys we are on. I...

https://connect.mayoclinic.org/comment/1300827/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 9 11:20pm

Comment

I’m not really able to give you much guidance as to your type of MDS and...

https://connect.mayoclinic.org/comment/1085200/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2024

Comment

Sharyn, it’s good you’re on the antibiotics. But if you don’t notice an improvement in another...

https://connect.mayoclinic.org/comment/756163/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2022

Comment

Hi Brenda, I was diagnosed as having “presumptive” MDS in February 2011. I had no symptoms...

https://connect.mayoclinic.org/comment/961018/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

Comment

Welcome to the group. I have had success controlling my blood sugar with Octreotide (Sandostatin LAR...

https://connect.mayoclinic.org/comment/1180040/

Discussion: Neuroendocrine insulinoma and MDS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2024

Comment

Hi @pathilt, I just wanted to check in with you to see how your sister is...

https://connect.mayoclinic.org/comment/1112602/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

Comment

Hi there - I am 70 years young & just diagnosed with MDS IB2. My hematologist...

https://connect.mayoclinic.org/comment/1266510/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25 11:47am

Comment

Just checking in on how everyone is doing. This is essentially my only support. I've tried...

https://connect.mayoclinic.org/comment/1183216/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024