Blood Cancers & Disorders Support Group

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Comment

I am 71 yo female, reasonably active, recently diagnosed with Jak2, with platelets rising to 750...

https://connect.mayoclinic.org/comment/887265/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Comment

You may find that despite having the JAK2 mutation, your life may not be any noticeably...

https://connect.mayoclinic.org/comment/194269/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2018

Comment

I was diagnosed PV in April ‘22, with JAK2 gene. Bloodlettings and Hydroxurea were prescribed. The...

https://connect.mayoclinic.org/comment/793807/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

Comment

Hi @tokyolin, I am following up on Lori’s comments to you. I was diagnosed a year...

https://connect.mayoclinic.org/comment/882028/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

Comment

I’m 57 Jak2+ with PV and no other risks factors for clotting thus far so that’s...

https://connect.mayoclinic.org/comment/1025967/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 2 9:20am

Comment

Hi Kevin -- Recently diagnosed with ET with numbers close to yours. Have you had genetic...

https://connect.mayoclinic.org/comment/1039634/

Discussion: Im 64 and my blood platelets have been in the low 530-550 range for yr

Support Group: Blood Cancers & Disorders

Posted: Mar 24 6:24pm

Comment

Hi, I've been following along, interested because I've had ET w/Jak2 for almost 2 years. Earlier...

https://connect.mayoclinic.org/comment/1174348/

Discussion: Are visual disturbances related to ET or hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 16 9:01am

Comment

I was originally diagnosed with ET based on a positive JAK2 bloid test. I asked the...

https://connect.mayoclinic.org/comment/194320/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

Comment

My experience was the best possible. I arrived, was put in a gown, and given a...

https://connect.mayoclinic.org/comment/1166063/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Nov 1 7:48am

Comment

The more research I do regarding my wife (Becky’s) ET diagnosis the more I’m wondering about...

https://connect.mayoclinic.org/comment/1154205/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Oct 8 7:27pm