Blood Cancers & Disorders Support Group

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Comment

I am so grateful for all the information I have received from the members of this...

https://connect.mayoclinic.org/comment/1097432/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

Comment

Do you know if you have any acquired gene mutations that have caused you to have...

https://connect.mayoclinic.org/comment/1091461/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Comment

There are foods which can help raise platelets. But when you have a JAK2 mutation, that...

https://connect.mayoclinic.org/comment/1083483/

Discussion: Which specific kind of doctor looks into thrombocytopenia?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

Comment

The meds will work but takes a while to get the dosage correct. My platelets were...

https://connect.mayoclinic.org/comment/1064057/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2024

Comment

I was diagnosed low risk MDS two years ago. My platelets have been steadily rising since...

https://connect.mayoclinic.org/comment/827434/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Comment

Hi Mortysdad… I am very interested in your progress with Pegasys for ET JAK2. I was...

https://connect.mayoclinic.org/comment/807054/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

Comment

My husband was diagnosed at 69, a year ago, with Primary Myelofibrosis including Jak2 mutation. A...

https://connect.mayoclinic.org/comment/693147/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2022

Comment

Dear PinkFlamingo. So sorry you’re going through all of this at such a young age. I...

https://connect.mayoclinic.org/comment/836046/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Comment

No travel problems here. We fly extensively every year, even since I was diagnosed, ET w/JAK2....

https://connect.mayoclinic.org/comment/1089517/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2024

Comment

Two years ago, at age 78, I noticed severe itching after bathing. A physicians assistant noticed...

https://connect.mayoclinic.org/comment/872059/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023