Blood Cancers & Disorders Support Group

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Comment

Ironically I just reached out to my husband’s team to ask about a new “rash” on...

https://connect.mayoclinic.org/comment/950088/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

Comment

Hi Lori - Wanted to update you on my visit with the new hematologist yesterday. Well...

https://connect.mayoclinic.org/comment/1263978/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 22 9:32am

Comment

Hi Howard…thinking about you this morning as you start your new treatment! I know how scary...

https://connect.mayoclinic.org/comment/828888/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Comment

Thanks for the question. I was diagnosed with Thrombocytosis, Essential Thrombocythemia and JAK2 gene mutation over...

https://connect.mayoclinic.org/comment/328592/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Comment

I too, have MDS. My platelets go up and down too, but as yet they haven't...

https://connect.mayoclinic.org/comment/1054226/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

Comment

No idea either what "extended" means... but my husband also has MDS 5q deletion, diagnosed late...

https://connect.mayoclinic.org/comment/1215894/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 18 4:11pm

Comment

My husband was first diagnosed with MM because of low white blood counts. Now after 3...

https://connect.mayoclinic.org/comment/296800/

Discussion: Leukopenia ( low white blood count)

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2020

Comment

Hi there, I was diagnosed with ET last March. My platelets were 1,200. I began taking...

https://connect.mayoclinic.org/comment/1035173/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024

Comment

I am not having electrophoresis. Other people may have this treatment. I know there’s chemo oral...

https://connect.mayoclinic.org/comment/1164882/

Discussion: Diagnosed with Mycosis fungoides. Don’t understand what to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2024

Comment

Hello everyone, At first, they thought I had MDS, but then another doctor said CCUS. My...

https://connect.mayoclinic.org/comment/1138386/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2024