Blood Cancers & Disorders Support Group

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Comment

Hi Brenda, I was diagnosed as having “presumptive” MDS in February 2011. I had no symptoms...

https://connect.mayoclinic.org/comment/961018/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

Comment

Welcome to the group. I have had success controlling my blood sugar with Octreotide (Sandostatin LAR...

https://connect.mayoclinic.org/comment/1180040/

Discussion: Neuroendocrine insulinoma and MDS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2024

Comment

Hi @pathilt, I just wanted to check in with you to see how your sister is...

https://connect.mayoclinic.org/comment/1112602/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

Comment

Just checking in on how everyone is doing. This is essentially my only support. I've tried...

https://connect.mayoclinic.org/comment/1183216/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

Comment

I'm 79 male and burdened with 5 mutuated chromosome that manife s ted into MDS/AML having...

https://connect.mayoclinic.org/comment/1183124/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

Comment

I really don’t want to jump in on this site but my husband’s doctor told us...

https://connect.mayoclinic.org/comment/1111404/

Discussion: T cell large granulocytic leukemia

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Comment

Hi, @5qdeletion. There are treatments for AML for patients who are older or unable to have...

https://connect.mayoclinic.org/comment/1030665/

Discussion: I just discovered I have leukemia

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

Comment

soonerfan. Thank you for posting. I'm at City of Hope in California. Who knew i would...

https://connect.mayoclinic.org/comment/1065951/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 11, 2024

Comment

My husband apparently had MGUS for about 5 years but we didn’t really know it until...

https://connect.mayoclinic.org/comment/959673/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

Comment

I also have mds/rars diagnosis. Started aranesp shots every other week and have had 2 iron...

https://connect.mayoclinic.org/comment/870886/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023