Blood Cancers & Disorders Support Group

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Comment

I have posted before about having JAK2 mutation - I have been followed by Hemo-oncologist for...

https://connect.mayoclinic.org/comment/975372/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2023

Comment

Polycythemia vera (PV) is primarily classified as a blood disorder, but it has characteristics of a...

https://connect.mayoclinic.org/comment/1114380/

Discussion: Been struggling with Polycythemia Vera for 2 years

Support Group: Blood Cancers & Disorders

Posted: Jul 30 6:53am

Comment

Hi cowestwinds, I am 78 with ET JAK2. After starting Hydroxyurea 500 mg daily in June...

https://connect.mayoclinic.org/comment/792191/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

Comment

I was diagnosed in December of this past year. Same thing, Jak2 mutation. I tried some...

https://connect.mayoclinic.org/comment/845763/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Comment

Hi milkweed, My hematologist recently suggested Anagrelide to me because I have had headaches taking Hydroxyurea....

https://connect.mayoclinic.org/comment/862257/

Discussion: Anagrelide: Do you switch? How to cover costs?

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

Comment

I have been on low dose Hydroxy for 2 months now - do notice small mouth...

https://connect.mayoclinic.org/comment/966488/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2023

Comment

Me, too. A routine blood test found high platelets, which led to a referral to a...

https://connect.mayoclinic.org/comment/974495/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2023

Comment

Thank you so much for your helpful response. I used a lot of google as well...

https://connect.mayoclinic.org/comment/1036657/

Discussion: New - possible Polycythemia vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Mar 19 4:25pm

Comment

Hi @winmil99, Many medications have a rebound effect if stopped abruptly. The same goes for HU...

https://connect.mayoclinic.org/comment/1038999/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Mar 23 2:00pm

Comment

Your hemo's dosing strategy is interesting, and I might ask mine about that. How often do...

https://connect.mayoclinic.org/comment/779191/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2022