Blood Cancers & Disorders Support Group

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Comment

I was diagnosed with ET and Jak 2 I was taking a baby aspirin daily though...

https://connect.mayoclinic.org/comment/598589/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 1, 2021

Comment

Myself, platelets getting higher, was told I have JAK 2 mutation - clueless as to what...

https://connect.mayoclinic.org/comment/325701/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Nov 26, 2020

Comment

Early 70's yrs, 5 mos ago annual wellness check indicated platelet count @ 600, now exceeds...

https://connect.mayoclinic.org/comment/194355/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2020

Comment

I am JAK-2 positive and I have not experienced back spasms, left side pains, left shoulder...

https://connect.mayoclinic.org/comment/194276/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2019

Comment

Baby aspirin (81mg) should be taken prophylactically every day if you’re over 60 even if you’re...

https://connect.mayoclinic.org/comment/1216392/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 19 10:14am

Comment

Not sure of your stated dosage intake. How many 500 mg (HU) are you taking per...

https://connect.mayoclinic.org/comment/1237416/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 15 10:01am

Comment

Here's a link to the NCCN website (National Comprehensive Cancer Network) that is full of great...

https://connect.mayoclinic.org/comment/1201848/

Discussion: Has anyone had a total knee replacement that also has JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 1 2:08pm

Comment

I can relate to the low adrenal function. I am 48, diagnosed with PV last year,...

https://connect.mayoclinic.org/comment/1126529/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2024

Comment

Hi, Vicky, I am 70, CALR+, have had ET for about 15 years. Doing OK, no...

https://connect.mayoclinic.org/comment/1103555/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

Comment

My platelets bounce between 57 to 600 then back down to 80. I was on hydroxyurea...

https://connect.mayoclinic.org/comment/1083471/

Discussion: Which specific kind of doctor looks into thrombocytopenia?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024