Blood Cancers & Disorders Support Group

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Comment

I have had leukemia for 3 yrs before being diagnosed with Jak 2

https://connect.mayoclinic.org/comment/194292/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2019

Comment

Perhaps so. It appears to be too coincidental that my platelet count went out of control...

https://connect.mayoclinic.org/comment/1205151/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 9:13am

Comment

I have ET with JAK 2, diagnosed for a few years now. I take one hydrea...

https://connect.mayoclinic.org/comment/1205210/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 10:05am

Comment

Thank you for responding – – all of you – – very much appreciated. I found...

https://connect.mayoclinic.org/comment/1088714/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

Comment

I’m new to this group and appreciate reading both the new and older posts. The first...

https://connect.mayoclinic.org/comment/1086852/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2024

Comment

I was diagnosed right away with Essential Thrombocythemia. (ET) having 1,250,000 platelets when first diagnosed. I...

https://connect.mayoclinic.org/comment/1051269/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

Comment

I have been diagnosed with ET Jak 2 last June. I am 70 , vegetarian x...

https://connect.mayoclinic.org/comment/1016618/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

Comment

I have been on HU, 500 mg daily for ET, JAK 2 positive, for almost 2...

https://connect.mayoclinic.org/comment/1005395/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2024

Comment

I am 75 years old and was diagnosed three years ago with PCV and Jak 2...

https://connect.mayoclinic.org/comment/985815/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Comment

I have the same situation and my oncologist put me on hydroxyurea 500 mg a day....

https://connect.mayoclinic.org/comment/981420/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023