Blood Cancers & Disorders Support Group

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Comment

I have been diagnosed with ET Jak 2 last June. I am 70 , vegetarian x...

https://connect.mayoclinic.org/comment/1016618/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

Comment

I have been on HU, 500 mg daily for ET, JAK 2 positive, for almost 2...

https://connect.mayoclinic.org/comment/1005395/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2024

Comment

I am 75 years old and was diagnosed three years ago with PCV and Jak 2...

https://connect.mayoclinic.org/comment/985815/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Comment

I have the same situation and my oncologist put me on hydroxyurea 500 mg a day....

https://connect.mayoclinic.org/comment/981420/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Comment

HI Lori - I hope I am replying to the right section. If not, please advise....

https://connect.mayoclinic.org/comment/967968/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

Comment

Hi all. I am in the process of being diagnosed with an MPN. The doctor hasn't...

https://connect.mayoclinic.org/comment/878074/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

Comment

Thanks for sharing. I have been on Hydrea for 8 years and have had success with...

https://connect.mayoclinic.org/comment/862305/

Discussion: Anagrelide: Do you switch? How to cover costs?

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

Comment

I’m JAK 2 positive, platelets in 700s. Started hydroxyurea 1000mg/day 2 weeks ago. Am experiencing unusually...

https://connect.mayoclinic.org/comment/848233/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2023

Comment

I have been trying to get help and told this is what I have, 2 years...

https://connect.mayoclinic.org/comment/806632/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

Comment

I was recently diagnosed with JAK-2 gene as well, but my hematologist was led to doing...

https://connect.mayoclinic.org/comment/796425/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023