Blood Cancers & Disorders Support Group

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Comment

I have PV Jak 2 positive.

https://connect.mayoclinic.org/comment/993717/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

Comment

For my skin cancer I used immiquod cream which allow the body to attack the cancer...

https://connect.mayoclinic.org/comment/981708/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Comment

When I first started on HU I was very tired. Now I am on 500 MG...

https://connect.mayoclinic.org/comment/973596/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2023

Comment

Do you have sleep apnea, that could be a polycell cause w a negative JAK. Sorry...

https://connect.mayoclinic.org/comment/872835/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Comment

For me it was slight vertigo that made me not as steady on my feet, loss...

https://connect.mayoclinic.org/comment/872185/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

Comment

I was diagnosed 3 years ago with PV and positive for Jak 2. I take 2...

https://connect.mayoclinic.org/comment/869702/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

I was diagnosed in January with jak 2 mutation and ET. I’m new to this sight...

https://connect.mayoclinic.org/comment/845004/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Comment

My platelets have steadily increased over the last 4-5 years. Always a little high resulting in...

https://connect.mayoclinic.org/comment/833183/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2023

Comment

I am an active 82 yr old female. For 10 years I had an elevated platelet...

https://connect.mayoclinic.org/comment/796396/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2023

Comment

@eansgardengirl Hello, and welcome! I too have a new diagnosis of ET, and trying to navigate...

https://connect.mayoclinic.org/comment/778643/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022