Blood Cancers & Disorders Support Group

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Comment

Hi, Karen here. I was diagnosed about a month ago with Essential Thrombocytosemia, the rate type....

https://connect.mayoclinic.org/comment/783499/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2022

Comment

I am also jak 2 positive as of 2019 and mgus since 201 3, now smouldering...

https://connect.mayoclinic.org/comment/755881/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

Comment

My platlets were at over a million and pain in my feet was unbearable. I had...

https://connect.mayoclinic.org/comment/599861/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021

Comment

I'm five mos in from the discovery of JAK 2, started at 680, now hovering above...

https://connect.mayoclinic.org/comment/194365/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2020

Comment

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

Comment

Hi. She has ET. It's driver, if I'm saying it right was the mutation of the...

https://connect.mayoclinic.org/comment/1210770/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 4:01pm

Comment

Hello, About a year ago I was diagnosed with antiphospholipid antibody syndrome and JAK 2 Mutation...

https://connect.mayoclinic.org/comment/194326/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2019

Comment

@Susan Ellis I take 2 Hydrea a day every day. Up until recently it kept them...

https://connect.mayoclinic.org/comment/194282/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2019

Comment

Hi Justin, I have been thinking that maybe I should get another opinion at Mayo because...

https://connect.mayoclinic.org/comment/188873/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2018

Comment

hEHello out there. My name is Nancy Bush (shortshot80,net) I arrived on the Mayo Clinic site...

https://connect.mayoclinic.org/comment/132610/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2017