Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,203 total results

Comment

I’m on my second month of Jakafi. I’ve had no side effects and so far my...

https://connect.mayoclinic.org/comment/1200841/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

Comment

Some commenters experienced a gradual increase of platelets. Mine shot up from 250 in July 2024...

https://connect.mayoclinic.org/comment/1269150/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 29 8:11am

Comment

My experience is: I am 72. In 2015 I was diagnosed with ET and came back...

https://connect.mayoclinic.org/comment/801448/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Comment

Hello, I see you're taking both Nattokinase and aspirin. I just started on my journey being...

https://connect.mayoclinic.org/comment/1258964/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 15 8:02pm

Comment

The only patients I've whose docs allowed them to run platelet levels up to 1,000 were...

https://connect.mayoclinic.org/comment/1010586/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2024

Comment

ET is a diagnosis thrown at patients who exhibit high consistent high platelet counts. You don’t...

https://connect.mayoclinic.org/comment/1247945/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 1 9:56am

Comment

Good morning! I wish we could have a cup of coffee together. Your post sounds familiar...

https://connect.mayoclinic.org/comment/1279837/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 12 7:56am

Comment

Hi. She has ET. It's driver, if I'm saying it right was the mutation of the...

https://connect.mayoclinic.org/comment/1210770/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 4:01pm

Comment

Hi, Is this ‘ JAK 2 positive result only attributes to a 7% chance that it...

https://connect.mayoclinic.org/comment/1281113/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 13 4:22pm

Comment

I’ve been on HU for 7 months after being diagnosed with essential thrombocytopenia. Platelet count approached...

https://connect.mayoclinic.org/comment/1204423/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jan 5 10:01am