Blood Cancers & Disorders Support Group

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Comment

I’ve been on HU for 7 months after being diagnosed with essential thrombocytopenia. Platelet count approached...

https://connect.mayoclinic.org/comment/1204423/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jan 5 10:01am

Comment

I'm 77 and 6 yrs ago I was found to need a TAVR for severe aortic...

https://connect.mayoclinic.org/comment/1164101/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2024

Comment

Hi Lisa, My husband Dave has struggled with chronic anemia and fatigue for 2 1/2 years....

https://connect.mayoclinic.org/comment/1163480/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

Comment

I had similar numbers as yours when diagnosed in Jan. 2023 at age 69 with ET/Jak...

https://connect.mayoclinic.org/comment/1079434/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2024

Comment

I am in the club!!BMB was not too painful, but there was a lot of pressure....

https://connect.mayoclinic.org/comment/1047207/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

Comment

Hi, I was just diagnosed with ET JAK 2 mutation waiting on my bone marrow test...

https://connect.mayoclinic.org/comment/1007484/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2024

Comment

My platelets were over 1800 when first found in thorough, routine exam over 20 years ago...

https://connect.mayoclinic.org/comment/999471/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2024

Comment

I have Essential Thrombocytosis- JAK 2 Mutation. My platelets have been way over a Million- 1...

https://connect.mayoclinic.org/comment/987619/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Comment

I was diagnosed with ET and Jak 2 I am taking hydrea . I doctor never...

https://connect.mayoclinic.org/comment/946214/

Discussion: ET and chemical pre-cautions?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

Comment

Hi Cindy and Torcia, I am sorry to hear you have this condition. I was diagnosed...

https://connect.mayoclinic.org/comment/941528/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023