Blood Cancers & Disorders Support Group

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Same Same Same Ridiculous fatigue. Cannot even keep up with the mundane anymore. Pain problems. Recovery...

https://connect.mayoclinic.org/comment/1036770/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2024

I looked for the covid vaccine triggering plasma cell dycrasias @leslie2121 and @kappaking and found a...

https://connect.mayoclinic.org/comment/1035032/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024

Hi, @2012can - I'm so glad that you were able to get your neuropathy and other...

https://connect.mayoclinic.org/comment/987954/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Hey Deborah. Well, in reference to the WFPBD idea - since I am alone, I have...

https://connect.mayoclinic.org/comment/917053/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 22, 2023

Hello from PA. I have a history that may give you some help with perspective of...

https://connect.mayoclinic.org/comment/81218/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2020

@treehouse5437 I imagine you went through MGUS then SMM before the multiple myeloma diagnosis? Of course...

https://connect.mayoclinic.org/comment/1231652/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7 2:24pm

Sorry for the long post, but I am confused (if I am overthinking this) and need...

https://connect.mayoclinic.org/comment/1043657/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2024

Anybody have any thoughts on Turmeric/Curcumin C3 dosing? I am currently taking 1g/day. The study I...

https://connect.mayoclinic.org/comment/1181217/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2024

Patty: You are kind to always respond, and I recognize I could be more focused on...

https://connect.mayoclinic.org/comment/1029286/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2024

I was diagnosed with mgus a few years ago. I've stayed stable, no progression. I had...

https://connect.mayoclinic.org/comment/970070/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2023

I would have low B-12 and low ferritin/iron if I wasn't treated with supplements. Two B-12...

https://connect.mayoclinic.org/comment/948198/

Discussion: How do you deal with iron infusions and side effects?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2023

Hi all! Brand new MGUS IgA here, with severe neuropathic foot itch (bottom balls of feet)...

https://connect.mayoclinic.org/comment/931576/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2023

Thank you, Colleen. I’ve been busily involved in projects so have not been checking in to...

https://connect.mayoclinic.org/comment/829674/

Discussion: Anyone with MGUS, do you have joint pain?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

@Colleneyoung and hnipper, your posts have been informative and helpful. Collene, as you know from my...

https://connect.mayoclinic.org/comment/734282/

Discussion: Hodgkin Lymphoma was stable, now new activity

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2022

@JustinMcClanahan , yes a day off helps, it's just always whenever I do the things I...

https://connect.mayoclinic.org/comment/292602/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2020

Hello everyone, I am new to the group. I was also told that I have MGUS...

https://connect.mayoclinic.org/comment/1222555/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 26 6:55pm

You truly are new to this diagnosis, and of course your responses are fresh. I am...

https://connect.mayoclinic.org/comment/965533/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2023

I took Evenity for 8 months rather than the full 12, but believe I got most...

https://connect.mayoclinic.org/comment/954726/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2023

When I was diagnosed with an M-spike 2 years ago which turned out to be IgG...

https://connect.mayoclinic.org/comment/1031085/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

@scalm Welcome to our Mayo Clinic connect group! I was a little reluctant to start any...

https://connect.mayoclinic.org/comment/1194828/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2024