Blood Cancers & Disorders Support Group

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Comments (1,895)

I started with pheriferial neuropathy in early 2018. After a few years I got a new...

https://connect.mayoclinic.org/comment/1101761/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2024

Welcome to Connect @eldernan76. It’s understandable to be overwhelmed when you get a new diagnosis. Most...

https://connect.mayoclinic.org/comment/965171/

Discussion: High risk smoldering myeloma protocol after 24 cycles of Revlimid?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2023

So sorry to hear what you’ve been through. I’m glad you’ve been able to get the...

https://connect.mayoclinic.org/comment/899942/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2023

Well, Betty…snicker snort! 😂 Your doctor not having your name correct doesn’t do much to inspire...

https://connect.mayoclinic.org/comment/878964/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2023

@donyork Welcome to Mayo Clinic Connect. It's nice to hear you have been having lab work...

https://connect.mayoclinic.org/comment/758197/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2022

Hi back at you, I’m in the United States. I have MGUS, a non specific condition...

https://connect.mayoclinic.org/comment/736050/

Discussion: Follicular Lymphoma: looking to connect with others

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2022

I was diagnosed as having MGUS 8 years ago. When told it was a precursor to...

https://connect.mayoclinic.org/comment/1123881/

Discussion: Finding the best Curcumin

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2024

@JustinMcClanahan Thank you for tagging me in to this conversation, Justin. I was diagnosed with MGUS...

https://connect.mayoclinic.org/comment/292601/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2020

Hematologists treated all kinds of blood cancers. They are generalists. A myeloma specialist treats SMM, MGUS...

https://connect.mayoclinic.org/comment/1049978/

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2024

I have myeloma. I have hip pain, but I do not have any bone lesions from...

https://connect.mayoclinic.org/comment/1037072/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2024

There are a lot of groups on the Internet where members share their experience with MGUS...

https://connect.mayoclinic.org/comment/950769/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2023

Thank you, dear @coleenyoung. I’m glad you liked my December 17 post and found it useful....

https://connect.mayoclinic.org/comment/790158/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

Ryan, my husband was diagnosis with MDS and just 1% from AML in August of 22...

https://connect.mayoclinic.org/comment/1062448/

Discussion: 75 year old father just diagnosed with AML

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

I am also experiencing neuropathy in my hands and feet and you’re absolutely correct about getting...

https://connect.mayoclinic.org/comment/1260099/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: Mar 17 8:22am

Ginger, thank you for your reply. I have just been diagnosed with MGUS in November this...

https://connect.mayoclinic.org/comment/1190936/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

@gingerw , sorry your going through alot!! Good hear your keeping up with everything and travels....

https://connect.mayoclinic.org/comment/974515/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2023

I just sent her a My Chart message. I am past being frustrated. I requested these...

https://connect.mayoclinic.org/comment/948546/

Discussion: Don't know what to think and feeling uncertain at this point

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2023

@pmm Patty, I had the same experience. When I needed to get a specialist, I had...

https://connect.mayoclinic.org/comment/934888/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2023

Yes; it’s not something that would happen with a different type of cancer..I don’t mean to...

https://connect.mayoclinic.org/comment/916424/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2023

Hi again Ginger. I just read the article on low WBC that you sent me. What...

https://connect.mayoclinic.org/comment/788492/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022