Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,002 total results

Comments (1,895)

Hi Mike, I have IGM MGUS (high IGM and low IGA and IGG) diagnosed in 2021....

https://connect.mayoclinic.org/comment/923899/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Hello Donna. I very much agree with the suggestion that you seek the counsel of a...

https://connect.mayoclinic.org/comment/923866/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

OH WOW!!!! Congrads I went to see my hematology my levels just go up high but...

https://connect.mayoclinic.org/comment/1170202/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2024

@scared58 First, welcome to Mayo Clinic Connect. Here, you will find many others who feel the...

https://connect.mayoclinic.org/comment/1254745/

Discussion: Newly diagnosed with MGUS and so anxious

Support Group: Blood Cancers & Disorders

Posted: Mar 10 11:41am

How much exercise really depends on so many things, including many you can't alter, like age...

https://connect.mayoclinic.org/comment/1143202/

Discussion: Resources for MGUS: What reading is helpful for the newly diagnosed?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2024

I’m glad you’re doing ok nancy1900 and thanks for the additional info - I really appreciate...

https://connect.mayoclinic.org/comment/884002/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

Hello again, I posted some months ago I was diagnosed two years with MGUS/IGG Lambda subtype,...

https://connect.mayoclinic.org/comment/752778/

Discussion: Hypocellular bone marrow: What do I need to know?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2022

Hello Carleen, The last time I was at a multiple Myeloma conference was a few years...

https://connect.mayoclinic.org/comment/74615/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2020

@leigh051 Welcome to Mayo clinic connect. One of the consequences of my MGUS diagnosis was getting...

https://connect.mayoclinic.org/comment/1121549/

Discussion: Persistent immature grans/left shift on CBCs

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2024

Howdy, I just happened upon this site. I was diagnosed with IGM MGUS back in 2012...

https://connect.mayoclinic.org/comment/1083313/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

Thank you, Patty, for the good advice. My doctor just doesn't have time anymore. I've tried...

https://connect.mayoclinic.org/comment/988723/

Discussion: MGUS I need help understanding my lab report.

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2023

I had my visit to Mayo yesterday, and everything is stable. Actually all the markers for...

https://connect.mayoclinic.org/comment/973490/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2023

Nick: I can completely relate to everything you said. It’s a very normal human reaction. I...

https://connect.mayoclinic.org/comment/937736/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

Hi @steffiney, I had Acute Myeloid Leukemia and a subsequent bone marrow transplant 4 years ago....

https://connect.mayoclinic.org/comment/890139/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

@amyboylan1 @ladyesheryl I found this helpful. https://www.myeloma.org/what-are-mgus-smm-mm After reading it, I realized that I needed to...

https://connect.mayoclinic.org/comment/1243159/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 22 3:51pm

I also am in same situation as you. I have many of same symptoms as you...

https://connect.mayoclinic.org/comment/937467/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

I was diagnosed in 2008 with neuropathy, later Poly Neuropathy. 2018 MGUS. To put this in...

https://connect.mayoclinic.org/comment/912580/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

I was diagnosed with MGUS IgG lambda in June 2023. My abnormal protein band 1 was...

https://connect.mayoclinic.org/comment/1205271/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 11:08am

@teralinda1 Welcome to Mayo Clinic Connect! I am quite sure you will find many of us...

https://connect.mayoclinic.org/comment/1077483/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: May 29, 2024

Oh wow, that all sounds nightmarish - so sorry you're going through all that. I can't...

https://connect.mayoclinic.org/comment/937734/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023