Blood Cancers & Disorders Support Group

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Comments (1,892)

Hi Sheryl Some recent research has shown that insulin resistance seems to be the cause of...

https://connect.mayoclinic.org/comment/1046127/

Discussion: Anyone with MGUS, do you have joint pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2024

I have increases in both FLCs but ratio stable. I’m also Biclonal IgG kappa and IgM...

https://connect.mayoclinic.org/comment/1003646/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2024

Yes! We have to remember that all treatment options carry risk. Personally, I prefer to embrace...

https://connect.mayoclinic.org/comment/963514/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

My husband was diagnosed with Cardiac Amyloidosis recently at Mayo Clinic. He had 2 biopsies to...

https://connect.mayoclinic.org/comment/898857/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Thank you Lori. This is such helpful information. I was diagnosed in February of this year...

https://connect.mayoclinic.org/comment/875317/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

@roch, the follow up notes were from a nurse that I last saw for my labs...it...

https://connect.mayoclinic.org/comment/1269823/

Discussion: No appointment scheduled for my labs at Mayo...??

Support Group: Blood Cancers & Disorders

Posted: Mar 30 7:38am

Good afternoon to all! I am new to this,, having recently discovered my diagnosis of MGUS....

https://connect.mayoclinic.org/comment/888474/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

Hi Gina. I was diagnosed with IgM kappa MGUS 8 years ago. Now 82. I think...

https://connect.mayoclinic.org/comment/830243/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

Hi @fishergramma Welcome to Mayo Connect and thank you for sharing your personal experience with MGUS,...

https://connect.mayoclinic.org/comment/746753/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

I thought you might be interested, I have run a red cell count of 3.75-4.00 most...

https://connect.mayoclinic.org/comment/849921/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2023

I have high-risk MGUS / SMM. I have posted here a couple of times, including details...

https://connect.mayoclinic.org/comment/1223628/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 28 8:08am

I use to ride bikes up to August of 2022 and got COVID in early August...

https://connect.mayoclinic.org/comment/991014/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

A year ago he told me that he didn’t think the MGUS would progress to Waldenstrom’s...

https://connect.mayoclinic.org/comment/1179842/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

I am sorry your father died of multiple myeloma. One of my friends died recently of...

https://connect.mayoclinic.org/comment/1149341/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Hello..thanks again for your feedback..spent 45 minutes with my GP yesterday…the time spent was very positive..the...

https://connect.mayoclinic.org/comment/1121067/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2024

My Kappa is 238 mg/L and Kappa/Lambda is 20. I was diagnosed with MGUS 8 years...

https://connect.mayoclinic.org/comment/1112060/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2024

Tumeric only contains a few percentage of curcumin. Good to see if tumeric interferes with any...

https://connect.mayoclinic.org/comment/1005646/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2024

@sjgray Oh, it is absolutely normal for us to feel the anxiety you speak of! Many...

https://connect.mayoclinic.org/comment/929603/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

in reply to @loribmt Thank you. I saw the hematologist's diagnosis this morning and it says...

https://connect.mayoclinic.org/comment/879074/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2023