Blood Cancers & Disorders Support Group

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Comments (1,892)

I have MGUS IgG Lambda, low levels of IgA. I’m on the cusp of SMM according...

https://connect.mayoclinic.org/comment/899437/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Hematologists usually treat a variety of blood disorders. Myeloma specialists are hematologists who treat patients with...

https://connect.mayoclinic.org/comment/1030366/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

My husband apparently had MGUS for about 5 years but we didn’t really know it until...

https://connect.mayoclinic.org/comment/959673/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

Hi Olivia. I’m so sorry you have no answers yet. I was in the hospital last...

https://connect.mayoclinic.org/comment/937777/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

Yes, same as other posts by people mentioning feeling wiped out after activity that usually otherwise...

https://connect.mayoclinic.org/comment/914897/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2023

@cemeterygal101 Wow, that is quite the combination to have at the same time. It seems like...

https://connect.mayoclinic.org/comment/848035/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2023

@gingerw I had PTH-Related Peptide and Dihdroxyvitamin D 1,25 Level blood tests and 24 HR Urine...

https://connect.mayoclinic.org/comment/817594/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

I have MGUS...mine shows slightly in bloodwork with a small M spike. I read sometimes if...

https://connect.mayoclinic.org/comment/264712/

Discussion: MGUS at young age

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2019

Hi @shannyd. You mentioned that your albumin/creatine ration is high. The protein in your urine, in...

https://connect.mayoclinic.org/comment/995974/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

You’re correct, @pmm. Our bone marrow is the heart of our immune system…the blood cell manufacturing...

https://connect.mayoclinic.org/comment/747022/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2022

@tmcclint92 Welcome to Mayo Clinic Connect. I'm glad you found us, and am curious how you...

https://connect.mayoclinic.org/comment/643580/

Discussion: What diagnostic tests did you have done to confirm Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2021

@dianelouchart65 Welcome to Mayo Clinic Connect! Yes, it will often take several different tests to determine...

https://connect.mayoclinic.org/comment/1246582/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 27 11:04am

@bigbob5461 When I was first diagnosed, medical people used the word “benign” when they talked to...

https://connect.mayoclinic.org/comment/1120783/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

MGUS patients frequently complain about neuropathy, myself included. Evidently it confuses us about the relationship of...

https://connect.mayoclinic.org/comment/925276/

Discussion: Wooziness and MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 6, 2023

@magic3ems Welcome to Mayo Clinic Connect! Fear or apathy can drive us to do things that,...

https://connect.mayoclinic.org/comment/1207615/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 9 11:28am

Thanks for providing your test data. I figured you had a good reason for having your...

https://connect.mayoclinic.org/comment/1251392/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Mar 5 9:53pm

@hsminc what a coincidence, I just got hip replacement on April 1. I know… It is...

https://connect.mayoclinic.org/comment/1291985/

Discussion: Any concerns if you have MGUS and need joint replacement surgery?

Support Group: Blood Cancers & Disorders

Posted: Apr 28 12:12pm

Thank you Rae. I am not on any chemo. Went in because I wasn’t feeling good...

https://connect.mayoclinic.org/comment/937486/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

Patty: so thankful and appreciative of your taking time to respond with comprehensive detail. All new...

https://connect.mayoclinic.org/comment/1121124/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2024

Your description of the sensory deprivation connected to neuropathy resonated, and also made me laugh. It’s...

https://connect.mayoclinic.org/comment/899130/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023