Blood Cancers & Disorders Support Group

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Comments (1,892)

I didn't want to know much about my MGUS results although I was getting tested every...

https://connect.mayoclinic.org/comment/848543/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

You have to have trust in your treatment efficacy so I’m glad you kept looking for...

https://connect.mayoclinic.org/comment/804242/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2023

@hopeful33250 Thank you for posting this, Theresa. I wonder if there is a transcript of this...

https://connect.mayoclinic.org/comment/109753/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2019

I eat high fiber, complex carbs, low sugar/salt granola out of rolled oats, pumpkin seeds, walnuts,...

https://connect.mayoclinic.org/comment/1271537/

Discussion: What are your favorite healthy breakfasts to make?

Support Group: Blood Cancers & Disorders

Posted: Apr 1 8:16am

I am so glad to find and join this group. I have struggled with doctors not...

https://connect.mayoclinic.org/comment/884229/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

@hgearheart i’m so glad that you are going to Mayo. I think even in more densely...

https://connect.mayoclinic.org/comment/1016354/

Discussion: Anyone else been diagnosed with CVID and MGUS and have multiple cancer

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2024

I am amazed at your reply after all the suffering you and your late husband went...

https://connect.mayoclinic.org/comment/911031/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2023

I hope you will find peace knowing I am 92 and just diagnosed with MGUS strictly...

https://connect.mayoclinic.org/comment/820768/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

Sound similar!This is so interesting as I have had MGUS now for 12 years and all...

https://connect.mayoclinic.org/comment/760020/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2022

I’m so sorry you and your partner went through that 😔❤️‍🩹 I do very much hope...

https://connect.mayoclinic.org/comment/964869/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2023

That's truly a set of Q for your medical team? I would put those in a...

https://connect.mayoclinic.org/comment/1135424/

Discussion: How high has anyone seen Lambda free light chain go with Mgus?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2024

@scnana Welcome to Mayo Clinic Connect! Getting a double diagnosis is certainly not for the faint-hearted,...

https://connect.mayoclinic.org/comment/1009127/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024

I was recently diagnosed with mgus, and ptch1 gene mutation and mthfr gene mutation and I...

https://connect.mayoclinic.org/comment/902390/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2023

Yes, we will have an appointment on July 26th and another blood draw before that. I...

https://connect.mayoclinic.org/comment/895259/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Hi! New here also. Thank you for the imformative post! Diagnosed with MGUS 2021 after lower...

https://connect.mayoclinic.org/comment/883740/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

I have experienced the same issues for the last 4-5 months.I was dx with MGUS in...

https://connect.mayoclinic.org/comment/880695/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2023

Hi Mitten, you're asking good questions and have great experts on your team to help monitor...

https://connect.mayoclinic.org/comment/752913/

Discussion: Hypocellular bone marrow: What do I need to know?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2022

@dazlin Hi! MGUS is a really tough issue sometimes. It has taken me a long time...

https://connect.mayoclinic.org/comment/106666/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2018

Hi, I am new here. 55 years old and dx with MGUS this past summer after...

https://connect.mayoclinic.org/comment/785649/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2022

@redgiles Welcome to Mayo Clinic Connect. First, congratulations on your 24 year thriver of breast cancer!...

https://connect.mayoclinic.org/comment/754486/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022