Blood Cancers & Disorders Support Group

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Comments (1,895)

@pmm I definitely agree with you. And if you all would allow me to relate my...

https://connect.mayoclinic.org/comment/963665/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

I was diagnosed 10 years ago with MGUS and was sure at each appt for awhile...

https://connect.mayoclinic.org/comment/698297/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2022

I was diagnosed with MGUS over a year ago while my primary doctor was testing me...

https://connect.mayoclinic.org/comment/1288052/

Discussion: M-Spike and Lambda light chain increasing while KL ratio decreasing

Support Group: Blood Cancers & Disorders

Posted: Apr 23 9:14am

I was diagnosed at 36. Depending on certain factors your H/O will decide your observation track....

https://connect.mayoclinic.org/comment/1260733/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 17 10:02pm

I currently doing the ZOE program! I have MGUS and other inflammatory processes. My 3 test...

https://connect.mayoclinic.org/comment/1037096/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2024

Ginger! That would be awful to start over with a new team. I guess I could...

https://connect.mayoclinic.org/comment/934956/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2023

@henriques I will be 70 this year. I was diagnosed with MGUS November 2017, smoldering myeloma...

https://connect.mayoclinic.org/comment/811612/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

Wow I am so sorry that no medical professional had the MGUS discussion with you. That...

https://connect.mayoclinic.org/comment/793942/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

Nice sentiment 🙂 I agree there’s sometimes a psychological/psychosomatic component that can influence daily life..that is,...

https://connect.mayoclinic.org/comment/971607/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2023

Hi @nick86, sorry to hear you have MGUS at a young age. The benefit to finding...

https://connect.mayoclinic.org/comment/957929/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 2, 2023

Recently I’ve been detected to have elevated PTH levels in my blood. Thanks to someone in...

https://connect.mayoclinic.org/comment/74593/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2020

Hello, thank you so much for your reply. You answered some of my questions. Yes, my...

https://connect.mayoclinic.org/comment/1094280/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

I assume that you have been tested for various autoimmune diseases that have anemia as a...

https://connect.mayoclinic.org/comment/1024149/

Discussion: A Pint of Sweat, Saves a Gallon of Blood

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2024

I have MGUS and osteoporosis. I was on Actonel, but I stopped them after 6 months,...

https://connect.mayoclinic.org/comment/264597/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2019

Hello 1nan, I too have MM. I was diagnosed with MGUS in 2007 and also did...

https://connect.mayoclinic.org/comment/109658/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2016

@ryder23 In regard to your findings, an elevated Kappa can be seen in other conditions such...

https://connect.mayoclinic.org/comment/1174230/

Discussion: Kappa light chains: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2024

I have had MGUS since 2002 - a long time. I no longer get anxious after...

https://connect.mayoclinic.org/comment/1143299/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2024

Ginger, what kind of foods move the needle for you? I try to avoid red meat...

https://connect.mayoclinic.org/comment/816578/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2023

I had it done two weeks ago, following the suggestion of folks here to get a...

https://connect.mayoclinic.org/comment/1199440/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

I had to look up NXG, what I came up with was "Necrobiotic xanthogranuloma (NXG) is...

https://connect.mayoclinic.org/comment/991158/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2024