Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,001 total results

Comments (1,895)

Thank you, Susan. You are probably right. I should get another opinion, but who? Yes, I'm...

https://connect.mayoclinic.org/comment/1000027/

Discussion: MGUS I need help understanding my lab report.

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2024

Finally found someone else with same issues. Diagnosed with MGUS 2017, and Pulmonary Sarcoidosis Oct. 2022....seeing...

https://connect.mayoclinic.org/comment/886123/

Discussion: MGUS + pulmonary sarcoidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Hi Ginger I’ve had MGUS for 23 years. I also have renal issues, High creatinine, kidney...

https://connect.mayoclinic.org/comment/861382/

Discussion: MGRS (monoclonal gammopathy of renal significance): Let's connect

Support Group: Blood Cancers & Disorders

Posted: May 17, 2023

Along with the MGus, I have Trigeminal Neuralgia. I have to take Pregabalin which has already...

https://connect.mayoclinic.org/comment/817600/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

@ethanmcconkey Thank you for inviting me in to the conversation. @suzye Welcome to Mayo Clinic Connect!...

https://connect.mayoclinic.org/comment/264593/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2019

Hi @dazlin Your original post can be found above Jamie's response to you. See it here:...

https://connect.mayoclinic.org/comment/106672/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2018

Healthy64. The best part of your story is what hospital you are at and you advocating...

https://connect.mayoclinic.org/comment/1222627/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 26 9:14pm

Hi Ginger, Thank you so much for responding and for your questions and comments. I'm going...

https://connect.mayoclinic.org/comment/1077993/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: May 30, 2024

I am been dealing with the same diagnosis for sometime now (53 years young) My team...

https://connect.mayoclinic.org/comment/1116426/

Discussion: Stopping Myeloma at the MGUS Stage

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2024

It seems all that registers is waiting and getting the worst answer of all, it sounds...

https://connect.mayoclinic.org/comment/958987/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

Hello @laurinea , Sorry you are having to go through this. It can certainly take its...

https://connect.mayoclinic.org/comment/942803/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

Hello all. Thought I would jump in and be part of the discussion on Waldenstrom disease....

https://connect.mayoclinic.org/comment/912177/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

I have certainly had good days and bad. I think the MGUS diagnosis was easier as...

https://connect.mayoclinic.org/comment/868908/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 29, 2023

@rustypenny There never is a "good time" to get a diagnosis, and coming around the holiday...

https://connect.mayoclinic.org/comment/1210689/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 1:43pm

I'm not sure if this will help but it can't hurt. My Kappa Light Chains are...

https://connect.mayoclinic.org/comment/886095/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

I was said to have MGUS about 10 years ago. I am now 79. I have...

https://connect.mayoclinic.org/comment/1189331/

Discussion: High Kappa Lamda ratio: What can affect the test?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2024

Hi Leslie, Thanks for your message. Thankfully everything has remained stable so far. My haemotologist has...

https://connect.mayoclinic.org/comment/1053192/

Discussion: Is it normal for free light chains to fluctuate?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024

First of all breathe, try to relax Both MGUS and SMM are not cancer, although there...

https://connect.mayoclinic.org/comment/958982/

Discussion: MGUS and understanding results

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

Have not tried estrogen suppositories yet. I have become resistant to 7-8 antibiotics. Am taking a...

https://connect.mayoclinic.org/comment/899809/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2023

Same situation here. ICU RN, Incidental finding on my labs last year, 24 hour urine done,...

https://connect.mayoclinic.org/comment/870250/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023