Blood Cancers & Disorders Support Group

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Comments (1,895)

I’m sure you will receive numerous responses from our members but I will tell you how...

https://connect.mayoclinic.org/comment/1229057/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 4 7:07am

This is the first time I have seen anything about 1q21. Now you know your 1q21...

https://connect.mayoclinic.org/comment/1207433/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 9 8:58am

Turmeric root has around 2-9% curcumin (also called curcuminoids). Get a supplement with the highest concentration...

https://connect.mayoclinic.org/comment/1142829/

Discussion: Resources for MGUS: What reading is helpful for the newly diagnosed?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2024

Red, I am seen at CARTI in Little Rock Arkansas. My oncologist/hematologist was unimpressed by the...

https://connect.mayoclinic.org/comment/767297/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Oct 30, 2022

I was diagnosed in March 2023 when I mentioned in an annual appointment that I was...

https://connect.mayoclinic.org/comment/1328137/

Discussion: Have MGUS and just caught Covid: Did Covid affect your numbers?

Support Group: Blood Cancers & Disorders

Posted: Jun 16 6:41am

Hey Mascot. I jokingly say that I live by my blood type, "B+." One thing I...

https://connect.mayoclinic.org/comment/911078/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2023

Hi @lipstickonmycollar. Love the @name! But not liking that you’re feeling so ill on a daily...

https://connect.mayoclinic.org/comment/810074/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023

Like others, I was diagnosed with MGUS about ten years ago, male age 77. I see...

https://connect.mayoclinic.org/comment/1229864/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 5 8:50am

Hi! I have had stable mgus for 3 years and I take 2 grams/day of Thorne...

https://connect.mayoclinic.org/comment/1117143/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

@tmcclint92 Is your doctor a hematologist oncologist? If not, can you be referred to one? I...

https://connect.mayoclinic.org/comment/1049629/

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

I started taking 8,000 mg Tumeric tablets about a month ago. My labs show decrease in...

https://connect.mayoclinic.org/comment/869311/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Thank you, Ginger. I know MGUS can lay dormant for one’s whole life. What I’m wondering...

https://connect.mayoclinic.org/comment/708550/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 15, 2022

I’ve had MGUS since 2010, like most no one could really tell me much about it...

https://connect.mayoclinic.org/comment/784228/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2022

Hi Patty, thank you so much for sharing your detailed experience. I don't take it lightly....

https://connect.mayoclinic.org/comment/1114053/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2024

I've been taking close to 2grams/day curcumin for about a month now. My LDH is now...

https://connect.mayoclinic.org/comment/1198898/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2024

I also have MGUS and am under the care of an oncologist who also isn’t worried...

https://connect.mayoclinic.org/comment/1083575/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

Speaking to your need to find a new physician. Since 1980 (I just dated myself!) I...

https://connect.mayoclinic.org/comment/1046089/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2024

Totally agree with you. I don't like this wait and see, especially when everytime I turn...

https://connect.mayoclinic.org/comment/885297/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2023

@cgerwig66 Welcome to Mayo Clinic Connect. I understand you were recently diagnosed with MGUS, and are...

https://connect.mayoclinic.org/comment/842868/

Discussion: Amyloidosis symptoms, negative fat pad biopsy?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

Thanks for your advice and I will definitely bring up those things at my visit. I...

https://connect.mayoclinic.org/comment/1083657/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024