Blood Cancers & Disorders Support Group

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Comments (1,465)

Yes, we will have an appointment on July 26th and another blood draw before that. I...

https://connect.mayoclinic.org/comment/895259/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

I was recently diagnosed with mgus, and ptch1 gene mutation and mthfr gene mutation and I...

https://connect.mayoclinic.org/comment/902390/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2023

@dazlin Hi! MGUS is a really tough issue sometimes. It has taken me a long time...

https://connect.mayoclinic.org/comment/106666/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2018

@scnana Welcome to Mayo Clinic Connect! Getting a double diagnosis is certainly not for the faint-hearted,...

https://connect.mayoclinic.org/comment/1009127/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 3 7:55pm

MGUS patients frequently complain about neuropathy, myself included. Evidently it confuses us about the relationship of...

https://connect.mayoclinic.org/comment/925276/

Discussion: Wooziness and MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 6, 2023

@gingerw I had PTH-Related Peptide and Dihdroxyvitamin D 1,25 Level blood tests and 24 HR Urine...

https://connect.mayoclinic.org/comment/817594/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

I have MGUS...mine shows slightly in bloodwork with a small M spike. I read sometimes if...

https://connect.mayoclinic.org/comment/264712/

Discussion: MGUS at young age

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2019

@cemeterygal101 Wow, that is quite the combination to have at the same time. It seems like...

https://connect.mayoclinic.org/comment/848035/

Discussion: Diagnosed with both multiple myeloma and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2023

Hi Olivia. I’m so sorry you have no answers yet. I was in the hospital last...

https://connect.mayoclinic.org/comment/937777/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

Yes, same as other posts by people mentioning feeling wiped out after activity that usually otherwise...

https://connect.mayoclinic.org/comment/914897/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2023

My husband apparently had MGUS for about 5 years but we didn’t really know it until...

https://connect.mayoclinic.org/comment/959673/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

Hematologists usually treat a variety of blood disorders. Myeloma specialists are hematologists who treat patients with...

https://connect.mayoclinic.org/comment/1030366/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 9 8:51am

Reply to @1oldsoul Thanks for the update. I'll be praying for you. My Hematologist/Oncologist has a...

https://connect.mayoclinic.org/comment/1178813/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: 1 day ago

Good morning @circawdm I would love to learn more about the diet and supplements recommended by...

https://connect.mayoclinic.org/comment/761413/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2022

@bonniecanby You should know that the symptoms you mention, anemia, pvc's and lots of pain, are...

https://connect.mayoclinic.org/comment/74558/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2018

I cannot find results re past trials using curcumin so I assume none have been completed....

https://connect.mayoclinic.org/comment/849320/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2023

True that, and this is a good thing. I think when you are first diagnosed it...

https://connect.mayoclinic.org/comment/870396/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Thank you Rae. I am not on any chemo. Went in because I wasn’t feeling good...

https://connect.mayoclinic.org/comment/937486/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

Your description of the sensory deprivation connected to neuropathy resonated, and also made me laugh. It’s...

https://connect.mayoclinic.org/comment/899130/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Hi Becky, Thank you for sharing your post. Like you... I was diagnosed with MGUS/ IGG...

https://connect.mayoclinic.org/comment/733919/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2022