Blood Cancers & Disorders Support Group

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Comments (1,895)

Oh gosh, @hi2l. I'm sorry that the comments here have made you more fearful than necessary....

https://connect.mayoclinic.org/comment/660078/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2021

@magic3ems I totally understand your reluctance to go back to see the oncologist. It is a...

https://connect.mayoclinic.org/comment/1208186/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 10 8:49am

I got the diagnosis of MGUS in 2021 but a couple years before that I had...

https://connect.mayoclinic.org/comment/1120887/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

@hgearhart I’m so sorry you’ve had so much to deal with. As a MGUS patient I...

https://connect.mayoclinic.org/comment/1009396/

Discussion: Anyone else been diagnosed with CVID and MGUS and have multiple cancer

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

Hello Friends--- I was diagnosed with MGUS in 12/21 and it can be very scary if...

https://connect.mayoclinic.org/comment/870944/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

I might add that I have also had MGUS for more than 20 years. I was...

https://connect.mayoclinic.org/comment/1198224/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

Then you might know Escondido, where I lived in the '60s and Fallbrook, where I have...

https://connect.mayoclinic.org/comment/1180002/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

Likely need to see an oncologist to get an answer if it was a GP that...

https://connect.mayoclinic.org/comment/1199577/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

I'll add a quick comment. My neurologist found the PN when I complained of pins and...

https://connect.mayoclinic.org/comment/1051110/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

I am so very sorry for what you went through with your husband. That should have...

https://connect.mayoclinic.org/comment/931777/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2023

Keep track of any symptoms (good and not) associated with the MM and DRVD treatment. It...

https://connect.mayoclinic.org/comment/1207419/

Discussion: Newly diagnosed CLL How to interpret FISH results?

Support Group: Blood Cancers & Disorders

Posted: Jan 9 8:43am

I have been having an assortment of apparently unrelated minor symptoms and my PCP is dismissive...

https://connect.mayoclinic.org/comment/1305671/

Discussion: AL Amyloidosis maybe?

Support Group: Blood Cancers & Disorders

Posted: May 16 5:10pm

Oh my goodness, Angie. You’re really going through a rough time right now. Whether MGUS has...

https://connect.mayoclinic.org/comment/1053528/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

Like someone above mentioned, you need to get your daughter to the best hematologist / oncologist...

https://connect.mayoclinic.org/comment/824746/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2023

Yes I was diagnosed with Kappa Light Chain MGUS in November. M-Spike of .5 was discovered...

https://connect.mayoclinic.org/comment/990801/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

Feeling fatigued daily. Diagnosed with MGUS-IGG Lambda. MM runs in my family. I have to see...

https://connect.mayoclinic.org/comment/727846/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2022

I find it interesting that the same issues seem to accompany MGUS . For what it...

https://connect.mayoclinic.org/comment/1125189/

Discussion: Desperately seek answer . really high kappa lambda light chain numbers

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2024

A lot of the usual keep-healthy stuff. Healthy diet, exercise (resistance training if aerobic is difficult),...

https://connect.mayoclinic.org/comment/1016666/

Discussion: Are there nutrition suggestions for preventing or slowing myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

Clifford do you have any other health issues? I’m so sorry you aren’t getting the answers...

https://connect.mayoclinic.org/comment/857558/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2023

@4kleo I'm so sorry to hear that. When I was first diagnosed with MGUS, I had...

https://connect.mayoclinic.org/comment/1285134/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 19 6:42am