Blood Cancers & Disorders Support Group

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Comments (1,895)

Hi there, I was diagnosed with MGUS back in 2017 after decades of dealing with polyneuropathy...

https://connect.mayoclinic.org/comment/1062642/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Hi @markgventnor, it’s not unusual for people to experience itching when they have a blood cancer...

https://connect.mayoclinic.org/comment/992982/

Discussion: What should doctor look for when testing my blood to be CMML donor?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024

I am seventy and it is always baffling to me how my body has found such...

https://connect.mayoclinic.org/comment/761456/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2022

Hello everyone, I'm a 49 yo f and was diagnosed with MGUS in April 2023. In...

https://connect.mayoclinic.org/comment/1247349/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 28 11:50am

Thank you SO much for replying, I was getting to MGUS worse case smoldering. He had...

https://connect.mayoclinic.org/comment/1188896/

Discussion: High Kappa Lamda ratio: What can affect the test?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2024

@dazlin, were you able to discuss your foot pain and fatigue with your Primary? I don't...

https://connect.mayoclinic.org/comment/981384/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

@116w72ndst After your bone marrow biopsy, and consultation with your doctor, things may indeed seem clearer...

https://connect.mayoclinic.org/comment/856678/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

I have a high kappa free light chain. My lambda and ratio are normal. From my...

https://connect.mayoclinic.org/comment/827765/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

I am an active 75 year old and I was diagnosed with anemia, than MGUS 6...

https://connect.mayoclinic.org/comment/996268/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

Just recently diaganosed as well with MGUS. I'll soon be scheduled for a bone marrow biopsy....

https://connect.mayoclinic.org/comment/898665/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2023

I hope you can relax with your diagnosis as hard as it is. All of us...

https://connect.mayoclinic.org/comment/1240141/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 18 3:51pm

I’m between a rock and a hard place as far as being diagnosed with WM. The...

https://connect.mayoclinic.org/comment/750837/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

I will be asking a lot of questions when I finally get to see someone. So...

https://connect.mayoclinic.org/comment/947827/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2023

Hum, one thing jumped out at me, Monoclonal Protein. I’m diagnosed with MGUS, a blood disorder...

https://connect.mayoclinic.org/comment/744954/

Discussion: Hemochromatosis & AAT

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2022

I'm 70, and my diet changed 15 years ago, before MGUS (8 years). Because of celiac...

https://connect.mayoclinic.org/comment/1167128/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2024

MGUS is scary, but only a tiny percentage of people have it progress to smoldering MM...

https://connect.mayoclinic.org/comment/1116854/

Discussion: Stopping Myeloma at the MGUS Stage

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

MGUS does cause reduced helpful antibody response - I was diagnosed 21 years ago after I...

https://connect.mayoclinic.org/comment/1188784/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2024

Welcome to Connect, @gabadoo24. I also had to look up NXG as I’m not familiar with...

https://connect.mayoclinic.org/comment/991300/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2024

Right now, I don't know. I went to a hematologist after still having anemia 5 months...

https://connect.mayoclinic.org/comment/827762/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Hi i have just been diagnosed with mgus my head is spinning could some one answer...

https://connect.mayoclinic.org/comment/793826/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023