Blood Cancers & Disorders Support Group

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Comments (1,895)

Greetings, it’s so frustrating to feel as though your medical needs aren’t being met. I had...

https://connect.mayoclinic.org/comment/859107/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

@dani349 hello, Dani, I’m so glad you found Connect. Watching and waiting is definitely challenging, especially...

https://connect.mayoclinic.org/comment/1033581/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2024

I was just diagnosed with MGUS. I’m reading there is no treatment and many can live...

https://connect.mayoclinic.org/comment/992106/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2024

If it helps, I have a long time customer that has MM. He had a stem...

https://connect.mayoclinic.org/comment/856964/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: May 9, 2023

Brandy @bvz4483, welcome to the Forum. As Ginger suggested, we are all best served by finding...

https://connect.mayoclinic.org/comment/973772/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Thanks Lori. Yes, I have received two shots and the booster a couple of years ago,...

https://connect.mayoclinic.org/comment/923249/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2023

I think it’s important to note that a very small percentage of patients with MGUS progress...

https://connect.mayoclinic.org/comment/732361/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

@ellie1955 Many of our members have heard my anxiety story so y’all can tune out. 😊...

https://connect.mayoclinic.org/comment/1146952/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

Patty…thanks again for taking the time to give me further insight. I’m 82 years old and...

https://connect.mayoclinic.org/comment/1119525/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2024

@bens Welcome to Mayo Clinic Connect. You're so right, this can all be overwhelming as you...

https://connect.mayoclinic.org/comment/697825/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2022

@bojean I’m so sorry to hear that your oncologist was so dismissive. From my own experience,...

https://connect.mayoclinic.org/comment/1146961/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

Kay: just read your post.. I was diagnosed just last week..and I’m thinking about it daily.....

https://connect.mayoclinic.org/comment/1119719/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2024

Just me again.. you would think that some doctor, somewhere, with all the advances in medicine...

https://connect.mayoclinic.org/comment/1119593/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2024

Hi. Thank you so much for all that information. I really appreciate it. Mild sedation was...

https://connect.mayoclinic.org/comment/1019824/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

I have mgus and for 2 years my monocytes, lymphocytes, and leukocytes absolute are high..and now...

https://connect.mayoclinic.org/comment/714473/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2022

I was diagnosed with MGUS in 2022 and CMT. Have had fibromyalghia for years and osteoarthritis,...

https://connect.mayoclinic.org/comment/1077328/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 29, 2024

@vera101 If you are not under the care of a hematologist oncologist, please consider getting an...

https://connect.mayoclinic.org/comment/1000202/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2024

Thank you. I called the office on the day I received the results and practically begged...

https://connect.mayoclinic.org/comment/811762/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2023

You said, "He replied that he is not, but has “studied medicine” all his life. 🙄"...

https://connect.mayoclinic.org/comment/751841/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2022

@nolarn Thank you for the compliment. I'm all for research that will help point the way...

https://connect.mayoclinic.org/comment/777382/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2022