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Comments (1,465)

That's truly a set of Q for your medical team? I would put those in a...

https://connect.mayoclinic.org/comment/1135424/

Discussion: How high has anyone seen Lambda free light chain go with Mgus?

Support Group: Blood Cancers & Disorders

Posted: Sep 3 9:08am

@pmm I definitely agree with you. And if you all would allow me to relate my...

https://connect.mayoclinic.org/comment/963665/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

I was diagnosed 10 years ago with MGUS and was sure at each appt for awhile...

https://connect.mayoclinic.org/comment/698297/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2022

@henriques I will be 70 this year. I was diagnosed with MGUS November 2017, smoldering myeloma...

https://connect.mayoclinic.org/comment/811612/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

Wow I am so sorry that no medical professional had the MGUS discussion with you. That...

https://connect.mayoclinic.org/comment/793942/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

Ginger! That would be awful to start over with a new team. I guess I could...

https://connect.mayoclinic.org/comment/934956/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2023

I currently doing the ZOE program! I have MGUS and other inflammatory processes. My 3 test...

https://connect.mayoclinic.org/comment/1037096/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Mar 20 11:08am

Hi @nick86, sorry to hear you have MGUS at a young age. The benefit to finding...

https://connect.mayoclinic.org/comment/957929/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 2, 2023

Nice sentiment 🙂 I agree there’s sometimes a psychological/psychosomatic component that can influence daily life..that is,...

https://connect.mayoclinic.org/comment/971607/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2023

This may make you feel a little better. I was diagnosed with ET in 2011. Platelets...

https://connect.mayoclinic.org/comment/848013/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2023

mgrspixi25 I'm so sorry to hear about your struggles there, including the wait times. I'm recently...

https://connect.mayoclinic.org/comment/931591/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2023

Thank you Lori and welcome new folks. Andrea, I very much agree with Lori that Amazon...

https://connect.mayoclinic.org/comment/886232/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

I had to look up NXG, what I came up with was "Necrobiotic xanthogranuloma (NXG) is...

https://connect.mayoclinic.org/comment/991158/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 4 7:44am

Hello 1nan, I too have MM. I was diagnosed with MGUS in 2007 and also did...

https://connect.mayoclinic.org/comment/109658/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2016

I assume that you have been tested for various autoimmune diseases that have anemia as a...

https://connect.mayoclinic.org/comment/1024149/

Discussion: A Pint of Sweat, Saves a Gallon of Blood

Support Group: Blood Cancers & Disorders

Posted: Feb 28 7:52am

I have MGUS and osteoporosis. I was on Actonel, but I stopped them after 6 months,...

https://connect.mayoclinic.org/comment/264597/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2019

Hello, thank you so much for your reply. You answered some of my questions. Yes, my...

https://connect.mayoclinic.org/comment/1094280/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Jun 26 3:25am

@kayabbott @allstaedt57 @pmm Hi Everyone, Thank you so much for your replies. I have an amazing...

https://connect.mayoclinic.org/comment/1010368/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 5 7:57pm

Recently I’ve been detected to have elevated PTH levels in my blood. Thanks to someone in...

https://connect.mayoclinic.org/comment/74593/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2020

MGUS - from what I have learned - definitely isn’t well understood (the key is in...

https://connect.mayoclinic.org/comment/958748/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023