Blood Cancers & Disorders Support Group

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Comments (1,895)

After 19 years with MGUS, I was diagnosed with MM last December. I did not have...

https://connect.mayoclinic.org/comment/209497/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2018

Hi, I was diagnosed with MGUS 13 years ago. It was progressing slowly until I got...

https://connect.mayoclinic.org/comment/734349/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2022

Good summary. I hadn't even noticed the link to all these papers. I based my opinion...

https://connect.mayoclinic.org/comment/1312772/

Discussion: Can weight gain cause progression from MGUS to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 25 5:11pm

Thanks for the reassurances. There are so many moving parts to this disease. My kidney function...

https://connect.mayoclinic.org/comment/1295071/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 2 12:42pm

I was diagnosed with MGUS recently based on an elevated kappa lambda ratio and elevated kappa...

https://connect.mayoclinic.org/comment/1038588/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2024

I *do* have MGUS, diagnosed summer last year. They consider me low risk and my M...

https://connect.mayoclinic.org/comment/1076271/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

I, too, am 72 and was diagnosed 3 months ago with MGUS with iron defiency. Had...

https://connect.mayoclinic.org/comment/894625/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2023

I just joined. I was diagnosed with MGUS in December 2018. I know I haven’t seen...

https://connect.mayoclinic.org/comment/817309/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

@award Let me add my welcome to the group here on Mayo Clinic Connect. There are...

https://connect.mayoclinic.org/comment/959097/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

Yep. I have MGUS too and I have joint pain in my right knee, elbows and...

https://connect.mayoclinic.org/comment/846546/

Discussion: Anyone with MGUS, do you have joint pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

You sound like me. I am newly diagnosed and have noticed a steady decline in my...

https://connect.mayoclinic.org/comment/788254/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022

I am 69 and have mild polyneuropathy (mainly loss of feeling in arms and legs) from...

https://connect.mayoclinic.org/comment/1050982/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

@1oldsoul I had a first dose of Evusheld in February. In two weeks I will get...

https://connect.mayoclinic.org/comment/739021/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2022

@bigbob5461 Greetings and welcome to Mayo Connect. I don’t know how recently you got the diagnosis,...

https://connect.mayoclinic.org/comment/1118767/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

Let's evaluate your specific risk factors for MGUS progression based on the criteria: --- ### **Your...

https://connect.mayoclinic.org/comment/1179996/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

Thank you, Lori, for the information. I had a spinal MRI yesterday and follow-up appointments with...

https://connect.mayoclinic.org/comment/849583/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2023

Sorry to hear that your Neuropathy has progressed over the past 6 years. Do you have...

https://connect.mayoclinic.org/comment/775022/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

I didn't want to start a new thread for something similar to your post-so I apologize...

https://connect.mayoclinic.org/comment/1330665/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 19 1:25pm

@lynne756 Welcome to Mayo Clinic Connect, Lynne! When we get a diagnosis that is confusing, it...

https://connect.mayoclinic.org/comment/785804/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2022

Hi all. Three questions as a newly-found MGUS IGA lambda 52-year-old, thus far assessed as intermediate-low...

https://connect.mayoclinic.org/comment/944343/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2023