Blood Cancers & Disorders Support Group

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Comments (1,895)

My own journey with MGUS started in 2014 when my neurologist recognized the ratio between proteins...

https://connect.mayoclinic.org/comment/1061387/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

@diana59 Welcome to Mayo Clinic Connect. Are you being followed by a hematologist oncologist? In my...

https://connect.mayoclinic.org/comment/971355/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2023

@roseyd It sounds like you have several health concerns right now. I don't know that the...

https://connect.mayoclinic.org/comment/829000/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

I'm also a 3b-stage cancer survivor of 10 years. With the diagnosis of MGUS. I've had...

https://connect.mayoclinic.org/comment/764262/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022

I have had MGUS, then smouldering myeloma since 2013 with very small increases. 2 years ago...

https://connect.mayoclinic.org/comment/746666/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

I was diagnosed with MGUS December 2024- this started in December 2023. My lab results were...

https://connect.mayoclinic.org/comment/1238465/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Feb 16 3:23pm

@newfiesgirl1 It sounds like you have had quite the journey so far! Of course, we don't...

https://connect.mayoclinic.org/comment/1272620/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 2 12:21pm

I would think the doctor would at least have him come in once a year.. My...

https://connect.mayoclinic.org/comment/1131820/

Discussion: MGUS Bloodwork Frequency

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2024

@amyboylan1 It's natural to be apprehensive when we get a diagnosis like this. There are a...

https://connect.mayoclinic.org/comment/1112772/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

So glad I just found this page I always feel like I'm alone going through this...

https://connect.mayoclinic.org/comment/1076746/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

My gastro doctor was looking to see why I was having abdominal pain and referred me...

https://connect.mayoclinic.org/comment/871268/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

Hi Colleen! Thank you so much for the welcome and the links to look at. It’s...

https://connect.mayoclinic.org/comment/1197545/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2024

Here are some links regarding further testing. I had a baseline bone marrow biopsy (BMB) 8...

https://connect.mayoclinic.org/comment/1180128/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2024

@mattymatilda and @amyboylan1, CHIP stands for clonal hematopoiesis of indeterminate potential (CHIP). In plain language, clonal...

https://connect.mayoclinic.org/comment/1117043/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

I'm 69 and was diagnosed with MGUS and collagenous colitis (a cousin of your colitis) about...

https://connect.mayoclinic.org/comment/1037565/

Discussion: MGUS, SMM or MM With Chronic Diarrhea Or Other GI Maladie?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2024

It is definitely more likely that one will die with MGUS as a benign and asymptomatic...

https://connect.mayoclinic.org/comment/1112835/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

Hi @milo3986 I was just discussing the bone marrow biopsy for MGUS with @steffiney who was...

https://connect.mayoclinic.org/comment/890147/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Greetings. It’s a lot to take in, isn’t it? The hematologist surely would refer you to...

https://connect.mayoclinic.org/comment/829705/

Discussion: Kappa light ratio and beta 2 microglobin

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

Hi, I was diagnosed this past January with MGUS. I do have the fatigue which is...

https://connect.mayoclinic.org/comment/1019678/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

Becky I have a MGUS diagnosis and have been to a hemotologist to test for MM....

https://connect.mayoclinic.org/comment/831463/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2023